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The Critical Role of a Caregiver in Navigating Systems of Care
No one knows your child better than you. When it comes to understanding their unique needs – you are the expert. This is critical for parents and caregivers of children with emotional, behavioral, and cognitive differences. Whether you are navigating systems of care, identifying areas of concern,...
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Awareness and Acceptance: 10 Things I Wish Everyone Understood About Autism
Twenty years ago, my daughter, Annie, was diagnosed with autism. Throughout our journey, I have learned that not everyone is aware of or fully understands her disorder, and when they see or interact with us, they may not know what to do or say. Annie is now a thriving 22-year-old, and as I...
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Paying It Forward: How a Simple Act of Kindness Can Go a Long Way
When my husband, Matt, and I set out on a quick trip to Florida with my 21-year-old daughter, Annie, who has autism and intellectual and developmental disabilities, among other differences, I had no idea how simple acts of kindness in the days to come would leave a lasting impact. We had...
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Helping Families with Disabilities Transition from Child to Adult Systems of Care
Having a child diagnosed with a lifelong disability is like planning a trip to one country, but unexpectedly arriving in a different country (read Emily Perl Kingsley’s essay Welcome to Holland). Just imagine, you have nothing packed that would make the trip easier or more comfortable, and you do...
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Creating a Summer Routine: Enriching (And Fun!) Activities for Children With Disabilities
Summer is a time of fun in the sun and making new memories. Although my children are now grown, I distinctly remember the days when they could not wait for their summer break to begin. As a parent, this time of year brought both feelings of excitement and apprehension. I wondered how I would...
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How to Advocate for Your Nonspeaking or Minimally Verbal Child or Adult
Over the last decade, there has been an increase in autistic self-advocates coming into the public eye through their incredible means to advocate for themselves - and others like them. These individuals have become a powerful voice for boards, committees, research and quality improvement...
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Making Meaningful Connections: Amy Kelly Discusses Value of Devereux’s Internal Family Support Group
At Devereux Advanced Behavioral Health, we are always looking for ways to better support our talented and hard-working team members. Devereux National Director of Family Engagement Amy Kelly, MBA, MNM, leads a family support group for Devereux employees and their significant others who are parents,...
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Planning a Summer Vacation: Travel Tips for Families of Children With Disabilities
Summer travel season is well underway. While traveling with children can be both fun and exhausting, if you are a parent or caregiver of a child with disabilities, even more planning may be required to have a safe and successful trip. This summer, I decided to take my daughter Annie on her first...
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Addressing a National Shortage of Autism Specialists
I remember the day as if it was yesterday – Wednesday, Oct. 15, 2003. It was my birthday, and I had just met with my 21-month-old daughter’s pediatrician to discuss her “global developmental delays.” In the most caring way, he told us, “You will need to see a developmental-behavioral...
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Managing Back-to-School Jitters: Tips to Help Children With Special Needs Ensure a Smooth Transition
Remember how it felt as a child before your first day of school? Perhaps you experienced butterflies in your stomach or loss of sleep the night before. You were excited to see your friends, but also nervous about what the new school year would bring. That is exactly how I am feeling about sending...
