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When Systems Don’t Fit: Navigating Lifespan Transitions for People with Profound Autism
Every year, in every state, hundreds more individuals with Profound Autism age out of educational services and enter the adult services system. This process is described by many as “falling off a cliff.” Families despair of finding services that will allow their adult child to maintain their...
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Supporting Children with Autism Through the Early Childhood to School-Age Special Education Transition
The transition from Preschool to Kindergarten is a significant milestone in any child’s life. For children with disabilities, however, particularly children with autism spectrum disorder (ASD), it can be particularly complex (Marsh et al., 2017). It is a season filled with mixed emotions:...
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Families, Systems, and Shared Solutions: Rebuilding Trust in Disability Services – Lessons from the OPWDD–Georgetown Partnership
I didn’t start as a systems guy. I started as a dad in denial, with no roadmap, no acronyms, and no patience for policy. Then our family hit rough water. Puberty flipped the table, literally. Supports vanished just when we needed them most. Person-centered practice became paper-centered...
