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An Interview with Elaine Hall, Founder of “The Miracle Project” and Mother of a Non-Speaking Autistic Adult, On the Concept of “Profound Autism”
This interview article was originally published on the Neurodiversity Press Blog and has been republished with permission. Michael John Carley: Elaine, tell me about your son, Neal. [caption id="attachment_8089" align="alignright" width="242"] Elaine Hall[/caption] Elaine Hall: Neal...
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Autism Advocacy Advice for Families of Color
Autism occurs equally in people of different races, ethnicities, and income levels, but autism services are not distributed equally, according to research. As a group, children who are Black, Hispanic, Asian-American, or low-income often receive fewer therapies and services for autism.1-2 They...
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Is It Genetic? My 40-Year Journey of Misdiagnoses for My Son
Forty years ago, my son Matthew was born. At the time of his birth, he had no apparent health issues. We began noticing that he wasn’t developing like a neuro-typical child when he wasn’t hitting milestones like rolling over. Since then, we have gone through countless tests and been given...
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Educational Entitlement for ABA Services: A Right for All
The old saying goes that if you meet one person with autism, you have met one person with autism. This alludes to the fact that people with autism have such a varying set of preferences, interests, strengths, and needs that no two are alike. As a result, the supports people need varies greatly with...
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Honoring My Limitations as an Autistic Entrepreneur
I am an autistic entrepreneur. That is a sentence I couldn’t have uttered that long ago. As far as the entrepreneurship part goes, I’ve run a business that I founded in 2013 called Autism Personal Coach. With the help of so many others, my company has turned into a business that is stable and...
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Autism Without Fear: A Major Flaw in College Autism Programs
I currently run New York University’s (NYU) Connections Program for Global Students with Autism. But I’m relatively new to higher education. I have a much longer history as a consultant, writer, and Executive Director, and back when my non-profits were engaging in the political battles of the...
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How to Advocate Successfully at School for Your Child with Autism
You want what’s best for your child with autism, but you’re not a teacher or a speech and language pathologist. How do you get the school’s special education team to listen to your ideas? What do you do if you suspect your child’s Individualized Education Program (IEP) is failing...
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Building a Better Future: A Blueprint for Diversity, Equity, and Inclusion in Autism Service Providers
In these times of significant staffing challenges, autism service providers across the country are re-examining their diversity, equity, and inclusion (DEI) practices. DEI are central HR issues that foster organizational well-being and improve recruitment and retention. Research has proven that DEI...
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Hiring People with Disabilities as Direct Support Staff – AHRC NYC Advance & Earn Provides Training and Support for NYC Youth With and Without Disabilities
“He has this desire to learn.” “I knew he was personable and had the temperament for the job.” These are the words of some AHRC New York City staff describing Alex DeCarlo, a Direct Support Professional (DSP) who brings a unique perspective to his colleagues and the people with...
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How to Advocate for Your Nonspeaking or Minimally Verbal Child or Adult
Over the last decade, there has been an increase in autistic self-advocates coming into the public eye through their incredible means to advocate for themselves - and others like them. These individuals have become a powerful voice for boards, committees, research and quality improvement...
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Pathways to Resolution of Special Education Conflicts
When conflict arises in an educational setting, there are multiple ways to resolve it. Some are small and easily resolved but may potentially lead to bigger conflicts and issues. Sometimes the conflict is substantial, and a resolution harder to achieve. Understanding different available methods of...
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Using Storytelling as a Self-Advocacy Tool
[su_spacer size="30"] I have always tried to advocate for myself, but I noticed from a very young age that I had difficulties doing so verbally. It takes a while for me to organize my thoughts to be able to speak, and I often say that even though my speaking and writing comes from the same...
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Opportunities for Disability Employment
One of the biggest misconceptions we address as financial advisors to neurodivergent clients is that people with disabling conditions cannot work and receive government benefits and supports. Not only that but that government is trying to make sure that you don’t work if you have a disability....
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Supporting Teens and Adults in Becoming the Best Self-Advocate They Can
The creation of self-advocacy is a story that is one of pioneering and revolution dating back as far as 1968 (Glumbić et al., 2022). Today, many self-advocacy organizations target elevating neurodiverse voices and providing space for neurodiverse individuals to advocate for themselves. The current...
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This is What Autistiphobia Looks Like: Why Autistic Advocacy Matters
The Researcher A lot of people do not like Autistic people. Which is a common topic in Autistic spaces. But many allistics who want to advocate with us, as allies, stop talking to me when I mention attitudinal barriers to accessibility. Or else they find creative ways to avoid the...
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“Putting Me in My IEP”: Encouraging Self-Advocacy in Younger Students
Parents and guardians may not know that students can participate in their Individualized Education Program (IEP) team meetings at any age and not just during post-secondary transition planning in high school. In describing the IEP team, the Individuals with Disabilities Education Act states “the...
