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Governor Hochul Announces New Ombuds Program to Help New Yorkers With Developmental Disabilities and Their Families
On December 13th, 2024, Governor Kathy Hochul announced that the new Ombuds for the developmental disabilities’ service system, headed by Community Service Society of New York, is now open and ready to accept New Yorkers’ calls in need of assistance navigating services, resolving complaints,...
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Practical Tips for a Sensory-Friendly Christmas for Autistic Children
Christmas is just around the corner. Unlike the white, snow-covered wonderland that many associate with Christmas, the festive season can be very lively and noisy and filled with appointments and various stimuli. There is a well-known quote that I think puts into words the way autistic...
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The Problem with Calling Neurominorities “Neurodiverse”
Calling individuals neurodiverse spreads neurodiversity lite. Neurodiversity lite is the pathology paradigm in disguise. The pathology paradigm marginalizes/medicalizes neurominorities. Using the word “neurodiverse” to refer to individual people spreads neurodiversity lite...
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Strategies for Autistic Adults to Achieve Greater Independence and Well-Being
The transition from childhood to adulthood can be a scary and difficult life experience for most people. It can be even more challenging for those diagnosed with autism and their families. This phase of life brings a blend of excitement and uncertainty, and the road to achieving greater...
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Advocating for Empowerment: Navigating End-of-Life Care for the Aging Autistic Population
While history began documenting autism in children in the early 1900s, it was not until later in the century that autism became recognized as a distinct circumstance. The first generation of children diagnosed with autism is just now moving into older age. With aging brings social, physical, and...
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Vote the Spectrum: An Unprecedented Opportunity for All Voices to be Heard
The U.S. Surgeon General, considered “the nation’s doctor,” is charged with the overall health of the nation by providing Americans with the best scientific information available on how to reduce the risk of illness and injury. Historically, this has included issuing warnings on the dangers...
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The Daniel Jordan Fiddle Foundation Announces 6th Adult Autism Focused Endowment Fund Establishing the Nation’s First-Ever Post-Doctoral Fellowship for Direct Care Service Providers
The Daniel Jordan Fiddle Foundation (DJFF), the nation’s first not-for-profit organization to exclusively focus on adult autism, has launched a ground-breaking endowment fund at the Medical University of South Carolina College of Health Professions (MUSC-CHP), adding to DJFF’s existing endowed...
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The Importance of Personalized Support and Care for Autistic Adults
People with autism have the potential for growth at every stage of life. When providing care for autistic adults, know that every moment and interaction can make a difference in their well-being and independence if you understand how they learn. Many of the people who receive support at The Summit...
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Charting New Paths to Wellbeing: Catalight’s Compass Behavioral Program Launched This Month
In an industry where a one-size-fits-all approach to treatment is too often the norm, Catalight’s new Compass Behavioral program teaches neurodivergent teens and young adults life skills that are important to them and their idea of future success. The innovative treatment option truly places the...
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Prospect Meadow Farm: Empowering Autistic Adults Through Vocational Training, Employment, and Community Building
Located in the Pioneer Valley of western Massachusetts, ServiceNet’s Prospect Meadow Farms provides vocational training and employment for more than 100 differently-abled adults aged 22 to 70, 20% of whom are on the autism spectrum. The original farm, located on 11 acres in Hatfield, was...
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Fostering Independence for Young Adults with Autism and Low Vision
VanBergeijk and LaVoie (2024 April & January) established in previous issues of Autism Spectrum News that “autism is the most commonly reported co-existing developmental disorder in children with blindness and other severe visual impairment.” They highlighted the need for a proper...
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Empowering and Supporting Women with Autism Spectrum Disorders
Women with autism spectrum disorders present with a complex social and behavioral profile that can differ from men. It is important to understand some of the diagnostic differences between women and men so that we can help empower women with autism spectrum disorders not only to address their...
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The Value of Facilitating Social Groups for Autistic Adults in a Community Mental Health Setting
Providing comprehensive and meaningful therapeutic services for autistic adult clients in a community mental health center requires offering a range of therapeutic groups within which a client can work to reach their potential in a way that might not be possible via individual therapy sessions...
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Artificial Intelligence in Education: Benefits and Risks for Neurodivergent Students
Artificial Intelligence (AI), seemingly all of a sudden, has permeated our world. New advances in technologies have the potential to assist students inside and outside the classroom and increase the potential for independence and success. AI can be used by educators to support students. It can be...
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A Collaborative Approach: Addressing Food Insecurity and Empowering Adults with Disabilities
New York City is experiencing unprecedented levels of food insecurity, with hunger impacting over 1.2 million New Yorkers in 2022.1 Visits to New York City food pantries and soup kitchens were up 75% in 2022 compared to pre-pandemic levels.2 Inflation costs soared along with the COVID-19 pandemic,...
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Amid Increasingly Extreme Weather, Autistic Individuals Left Particularly Vulnerable to Climate Change Effects
Sherman Gillums Jr., the Federal Emergency Management Agency Director of Disability Integration and Coordination, remembers the event that made him realize emergency responses during natural disasters needed to be more autism-inclusive. In the throes of Hurricane Ian — the fifth strongest storm...
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A Maze of Red Tape: My Experience with Benefits and Bureaucracy
Though I was diagnosed as autistic in my infancy and can remember as far back as when I was four years old, I never realized I was different until the second grade, when I was shuffled between special and regular education, when I made the fateful decision to become fully integrated into the...
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Building a Healthcare Transition Program for Autistic Patients Entering Adulthood
The rise in the diagnoses of autism spectrum disorder in youth will mean a rise in the number of adolescents transitioning to adult medical care. 50,000 youth with autism are estimated to enter adulthood each year (Rast et al., 2020) with varying degrees of communication skills, adaptive...
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Supporting Autistic Individuals in Driver Education: A Systematic Approach
Learning to drive is a significant milestone, symbolizing greater independence and autonomy. Driving independently offers freedom, builds confidence, and encourages self-reliance, empowering individuals to make their own decisions (Cheak-Zamora, Tait, & Coleman, 2022). Additionally, independent...
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A Simple Guide to Wealth Building for Autistic Folks
I realize it might seem odd that a therapist is writing an article about money, but I’ll have you know finance has been one of my autistic special interests for over ten years. Over the years, I’ve read and listened to countless books and podcast episodes on finances. I would never preach one...
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Navigating the Later Stages of Life with Autism and Aging
Something that we as a community have yet to fully turn our attention to is the question of “how do we help our autistic elders thrive and live in dignity as they age?” As a late-diagnosed autistic woman, I am a pretty good example of what growing up and growing old without any...
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The Complete Autistic Travel Guide
Travel, whether for necessity or pleasure, is an important part of human existence and opens the door to a variety of new experiences. For many, it also presents opportunities for excitement and adventure, as well as a welcome change from the boredom of daily life. To the autistic person, however,...
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Cultural Autism Studies at Yale: A Revolution
I have always been sensitive to cultures around me, especially those that remain largely silent or unseen. As a child, I would spend hours watching how crawdads moved together, what dances turtles did when they communicated, and what joy interactive playing brought to jumping spiders - every facet...
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Navigating Sex as an Autistic Adult
It has long been thought that autistic adults desire sex at a lower rate than the general population, and recent research has shown this to be an incorrect assumption seeded with infantilization (Weir et al., 2021). Although autistic adults often need accommodations to be made regarding sensory...
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Autistic Resilience: Overcoming Adversity Through Self-Care and Strengths
I could say ‘Adversity’ was my middle name, but I’d be lying… it’s Rae. Still, like so many other autistic people, adversity has been part of my life for as long as I can remember. Research has validated that claim by saying autistic people have an increased risk of experiencing...
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What Neurodiversity Means to This Late-Identified Autistic Adult
I lived the first 40 years of my life as an autistic individual who didn’t know it yet. In a sense, lost because I lacked a complete picture of who I was. Confused because I faced too many questions as to why I was contending with challenges that were foreign to just about all of my peers, which...
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Building Self-Advocacy Skills in Autistic Young Adults
Adulthood is the time when teachers and parents can no longer advocate for their children the same way they could during the school-age years. Much of it becomes the responsibility of the adult. At the beginning of my career, I had the opportunity to develop an evidence-based curriculum in...
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Three Artists with Autism. Three Voices with Purpose: Laura Nadine, Blair Bunting, and Stuart Neilson
Artists invite their audiences into conversation. A piece of music, a photograph, a painting—each is a personal statement created to connect emotionally or intellectually with listeners and viewers. These expressions and the methods used to create them are shaped by lived experiences, some...
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Real Boys Cry: Gus Walz, Neurodiversity, and the Fight for Disability Rights
It was a heartwarming viral moment that many will never forget. As the father of Tariq, my adult son with autism who is nonspeaking, it struck a deep chord in me. Most men have grown up with the maxim that “Big Boys Don’t Cry.” Breaking that traditional masculine model with exuberant cheers...
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Tips for Autistic Adults Navigating Full-Time Employment
Full-time employment is not something that is usually discussed in autism circles. When I was initially part-time, I had no idea how it looked at. All I knew was that I needed a full-time job to make a living, and it allowed others to pay for larger quality of life investments like homes or getting...
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What I’d Like to See Change in the Disability World Over the Next 50 Years – Part 3: REAL Culture Change
In 2003, I was about to say “no” to the offer to start what would become GRASP. I had been a minor-league diplomat who, throughout the ten years of working for my organization (if you can believe this…), they had gone through five Executive Directors in one six-year period. Twice, I was...
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Diagnosis, Resources, and Behavior Changes – A Journey of Self-Discovery
Time changes our framing of incidents. When they go poorly, it’s not unusual to replay them in our minds in search of a more acceptable arc. This narrative is what I’ve learned from a situation that resolved well but which has also coughed up useful lessons. In the two or three years...
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Zoning for Neuro-Inclusive Communities: Challenges, Foundations, and Lessons Learned
Across the United States, there’s a growing focus on making communities more inclusive for individuals with autism and other developmental disabilities. This shift reflects a broader commitment to ensuring that all residents, regardless of their needs, can find supportive and accessible living...
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The Complexities of Aging: Addressing the Unique Needs of Autistic Elders
Although there is little known about autism and aging, elders nonetheless need appropriate care now. Through learning about appropriate and intentional assessment and treatment, providers and allies can make a big difference, even in small ways. Although autistic traits are seen far back in...
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Autism BrainNet: Promoting Understanding of Autism Through Brain Donation
Like every unique person, autistic people contribute to the richness of our experience in the world. But autistic people also face challenges that vary in severity and complexity. The Simons Foundation supports multidisciplinary research into many aspects of autism with the hope that new knowledge...
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Bridging the Gap: Advancing Research and Services for Autistic Adults
Several factors have led to a general improvement in the outcomes of children and adolescents as they become adults. Both earlier diagnosis and better treatments play important roles in this improved outcome, although it must also be noted that a minority of individuals remain significantly...
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Demystifying the Evaluation Process for Your Infant, Toddler, and Preschool Child with Developmental Concerns
Suspecting something may be wrong with your child’s development is a scary thought. It can be confusing as to what one does next. If your child is born with an apparent disability, the pediatrician will refer your infant or toddler to the birth-to-three system, where a team of professionals will...
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Creating Autism-Friendly Environments for Workplace Inclusivity
In an increasingly diverse and inclusive world, creating autism-friendly environments in the workplace is not just a noble endeavor but a practical necessity. Autism Spectrum Disorder (ASD) affects millions of people worldwide, and many of them possess unique skills and perspectives that can be...
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Expanding Horizons: Tips for Life-Changing Inclusive International Travel
“Travel makes one modest. You see what a tiny place you occupy in the world.” - Gustave Flaubert Anyone who has traveled abroad knows the feelings of wonder and excitement that come with exploring new places. Experiencing other cultures, customs, landscapes, food, art, and architecture...
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The Power of Person-Centered Planning in Supporting Autistic Adults
Everyone wants to be heard and supported in ways that truly resonate with them. For adults with autism, this means having a voice in how their lives are shaped, and person-centered planning is the key to making that happen. It’s a process that ensures individuals are at the heart of their own...
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Mask of Your Own Face – Experiences with Masking as an Autistic Adult
Imagine for a moment that you are a kid. As far as you’re aware, you’re like every other kid, but as you go throughout your childhood and adolescence, people start pointing out parts of you that seem a bit…off. Maybe your interests are strange or inappropriate; maybe the way you talk and move...
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Prioritizing Autistic-Centered Self-Care for Mental Health and Well-Being
I could never relate to most social media posts with self-care ideas, especially the ones showing nails getting done or drinking wine in a bathtub. The thought of going to a beauty salon has always given me anxiety, and baths were never my thing. I couldn’t really find self-care tips or ideas...
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Just Because We Can Mask Doesn’t Mean We Don’t Need Support as Autistic Adults
We spend a lot of time in the Autism community focused on children and how to support their needs. I admit this is the focus of my career, but we sometimes forget that autistic children become autistic adults. And while progress is often made as autistic people age and mature, there will often...
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Navigating Career Pathways: Challenges and Opportunities for Autistic Individuals
It is, indeed, not easy for many people to make sense of the job market, but often, additional obstacles make autistic people’s lives much more challenging. With both finding a job and sustaining it, and at every level of the employment process, we face challenges which, unfortunately, may affect...
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A Presumption of Competence: Empowering Disability Advocacy and Independent Living
On June 18, 2024, the White House hosted an Olmstead 25th Anniversary Observance to commemorate the Supreme Court decision (Olmstead v. L.C.) that ruled institutionalizing people with disabilities who were capable of community living was a violation of the Americans with Disabilities Act (ADA). One...
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Empowering Autistic Communities: The Role of Co-Creation in Research Partnerships
Participatory research is an approach that can empower autistic community members through the co-creation of knowledge, addressing power imbalances, and fostering meaningful collaboration between autistic community members and academic researchers (Stack & McDonald, 2018). By actively involving...
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The Autism Theater Project’s “The Voice Inside”: Changing Lives and the Entertainment Industry
My name is Gena Sims. When I was 18 years old, God gave me this vision. I was in my room, thinking about how isolated families in the autism community can feel. I thought of my sister’s fears that the kids on the playground wouldn’t understand her. I saw my family’s struggles to celebrate...
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The Cost of Literacy for Autistic Adults
Today, more than ever, literacy agencies nationwide are being called upon to assist adults with low literacy. Literacy Statistics “48 million adults lack basic reading, writing, and math skills beyond a third-grade level” (Literacy Facts, 2023). If every adult in the US functioned at...
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Tapping Into Strengths: Empowering Autistic Individuals to Self-Advocate in the Workplace
Up to 85% of autistic individuals with a college degree are unemployed or underemployed (Autism Society). This often is attributed to a variety of factors, including differences in communication and challenges in reading social cues and making eye contact, all of which are an integral part of the...
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Are Therapy and Accommodations Sufficient for Autism Empowerment?
Please note: The terms Aspie, ASD/Neurodivergent, and Autistics will be used to refer to people with Autism. A quick Google search for “supporting” or “empowering” Autistic people brings up pages recounting our impairments and suggested accommodations in education and employment. In the...
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Embracing Neurodiversity: A Social Revolution of Autism and New Perspectives
Over the past 25 years, I have noticed a movement that has been gaining momentum, aiming to reshape societal views and acceptance of autism and the broader community of individuals with intellectual and developmental disabilities (IDD). If I could name this movement, I would call it Embracing...
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Creating Autism-Friendly Workplaces: Strategies for Inclusivity and Success
Creating autism-friendly environments in workplaces involves implementing strategies that accommodate the unique needs of autistic individuals, fostering inclusivity, and improving overall workplace productivity. Research and expert opinions emphasize the importance of clear communication,...
