Posts Tagged ‘caregivers’

Accessory Dwelling Units Offer More Housing Options and Keep Loved Ones with Disabilities Close to Home

Moving out of a family home is often one of the biggest decisions in a young person’s life, representing a turn towards independence and a chance to create their own space in the world. While this is a big step for any individual, it can be especially challenging for individuals with...

Assembling an Emergency Toolkit for Children with Disabilities

In the journey of parenthood, one of the most challenging things caregivers of children can encounter are the inevitable injuries and emergencies. Last year, I had to take my daughter, Annie – who has autism and intellectual and developmental disabilities – to the emergency room (ER). Going...

Why Autism Parents Say: “I Can Never Die”

The caregiving workforce shortage is and will be a crisis for so many Americans. “I can never die.” This is the rallying call of autism parents everywhere. Why do we feel that way? Because many autistic adults live with their parents—85%, according to autism researcher Peter Gerhardt....

The Dilemma of Aging Parents with Adults with Autism Still Living at Home

In a summary of key findings from the 2015 National Autism Indicators Report, we parents now have confirmation: “Young adults with autism had the lowest rate of independent living (19%) compared to their peers with other disabilities.”1 The 2015 State of the State in Developmental Disability...

Common Mealtime Concerns in Individuals with ASD

Feeding problems in children with ASD may include selective eating or “picky eaters,” rapid eating (child takes numerous bites within a short period of time), inappropriate mealtime behaviors (e.g., tantrums), and inadequate intake/food consumption. These behaviors can lead to numerous health...

From Hopeful Graduation to Hopelessness – The Transition That Many Parents Face

Recent updates by Center for Disease Control and Prevention (CDC) indicate that 36,500 children out of the 4 million born in the United States will have an Autism Spectrum Disorder (ASD) diagnosis. An individual with ASD will require care and services for up to 50 years, according to CDC, at a cost...

Parental Stress and Family Relationships During the Transition to Adulthood

Previous research has found that parents of children with ASD across different age groups exhibit significant levels of stress and are at greater risk for mental illness. The stress exhibited by parents of children with ASD has been found to be even greater than parents of children with other...

An Overview of Strategies to Address Food Selectivity and Refusal in Individuals with Autism

Feeding difficulties are common in typically developing children (2-35%), and are even more common in children with developmental problems (33-80%; Babbitt, Hoch, & Coe, 1994; Burklow, Phelps, et al, 1998). Feeding difficulties in individuals with autism is one of the most challenging...

Supporting Grandparents of Children with ASD – The Story of a Grandmother’s Adult Daughter and Her 12-Year-Old Autistic Grandchild

Early on, doctors had given them little hope, announcing that her granddaughter would never talk, play with others, or make eye contact. She proudly tells the member of the Grandparents Support Group of children on the autistic spectrum that, although her granddaughter struggles, she is now in a...