-
Empowering Caregivers Through an Innovative Peer Navigator Program
After a child receives an autism diagnosis, caregivers begin to look for appropriate services and supports. This journey requires them to navigate a very complicated service system. Caregivers are usually tasked with coordinating their children’s medical, educational, and community-based services...
-
Listening is Key to Supporting Families and Caregivers and Leads to Better Outcomes
Supporting families and caregivers is a lifelong learning process as children and young adults with autism spectrum disorders (ASD) typically undergo many changes. When providing workshops to families about accessing services, I began to consider the question of how we can support them further, as...
-
Supporting Caregivers During the Pandemic
The COVID-19 pandemic drastically changed the lives of many. Beginning in March 2020, many became immediately isolated, experiencing increased stress and anxiety. Parents caring for children of all ages were impacted by these variables the most. It is already known that parenting is a stressful...
-
CDC Launches COVID-19 Resources for People With Intellectual and Developmental Disabilities and Care Providers
The COVID-19 pandemic has created unique challenges for people with intellectual and developmental disabilities (IDD). To address them, the Centers for Disease Control and Prevention (CDC) created a COVID-19 toolkit with communication resources explaining in plain language how people with IDD...
-
Crisis Management in Children with Autism and First Responders
Children diagnosed with autism spectrum disorder (ASD) are more likely to engage in challenging behavior than their neurotypical peers. Severity of these behaviors range from mild to very severe and include topographies such as aggression, self-injury, destructive behavior, pica, and elopement...
-
Identifying Why Challenging Behavior Occurs: Tips for Prevention
Children with autism often display higher rates of challenging behaviors, including non-compliance, aggression, self-injurious behavior, and socially inappropriate behavior such as disrobing in public, when compared to typically developing peers (Holden & Gitlesen, 2006). It can be difficult...
-
Accessory Dwelling Units Offer More Housing Options and Keep Loved Ones with Disabilities Close to Home
Moving out of a family home is often one of the biggest decisions in a young person’s life, representing a turn towards independence and a chance to create their own space in the world. While this is a big step for any individual, it can be especially challenging for individuals with...
-
Assembling an Emergency Toolkit for Children with Disabilities
In the journey of parenthood, one of the most challenging things caregivers of children can encounter are the inevitable injuries and emergencies. Last year, I had to take my daughter, Annie – who has autism and intellectual and developmental disabilities – to the emergency room (ER). Going...
-
Why Autism Parents Say: “I Can Never Die”
The caregiving workforce shortage is and will be a crisis for so many Americans. “I can never die.” This is the rallying call of autism parents everywhere. Why do we feel that way? Because many autistic adults live with their parents—85%, according to autism researcher Peter Gerhardt....
-
The Dilemma of Aging Parents with Adults with Autism Still Living at Home
In a summary of key findings from the 2015 National Autism Indicators Report, we parents now have confirmation: “Young adults with autism had the lowest rate of independent living (19%) compared to their peers with other disabilities.”1 The 2015 State of the State in Developmental Disability...
