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Anderson Family Partners: Extended Family, Redefined
For Colleen Contreni, Family Liaison at Anderson Center for Autism, the concept of ‘extended family’ has long inspired her work. “I have always been a very family-oriented person, and this role at Anderson is a reminder that by cultivating a spirit of kinship among parents, caregivers, and...
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Managing Feeding and Toileting Challenges in Children with Autism
Challenges with toilet training (e.g., frequent accidents, withholding urine or feces) and eating (e.g., food selectivity, getting sufficient nutritional intake) may have a significant impact on the child’s functioning in the home, school, community, and social events. These issues often impact...
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Autism and Marriage: Making Your Relationship Work Under the Pressures of Caregiving
Having a child with autism can certainly put strain on a marriage. I should know. After over 20 years of marriage with two children on the autism spectrum, my marriage came to an end. So why am I writing an article about making your relationship work? Because it’s too important not to. My...
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Self-Care is Not Selfish: The Important Role Self-Care Plays in Promoting Good Outcomes in Autistic Individuals
Self-care is one of those buzzword phrases that often goes in one ear and promptly out the other. Well-meaning clinicians, and even the latest podcast gurus, talk about prioritizing self-care in a world that is constantly demanding more and more of your time and energy as a family member. We are in...
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“Reflecting on the Journey” – A Retreat for Parents of Autistic Family Members
This past year marked the 25th anniversary year of our annual weekend retreat for parents of young and adult autistic individuals. This innovative family support activity has become a highlight of the year for us, and for many of the approximately 60 parents of autistic family members who join us...
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Services for the UnderServed’s Positive Psychology Approach to Serving People in Crisis and Their Families
Since 2016, Service for the UnderServed’s START/CSIDD (Crisis Services for Individuals with Intellectual and/or Developmental Disabilities) Program offers crisis prevention and response services to people who have both developmental disabilities and complex behavioral needs and their families and...
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The Invisible Struggle: Autism Diagnosis in Immigrant Families
According to Constance Baker Motley, the first Black woman elected to the New York State Senate in 1964, “something which we think is impossible now is not impossible in another decade.” About 11 years back when I was graduating as a Doctor of Social Work, I held similar thoughts for the...
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Empowering Caregivers Through an Innovative Peer Navigator Program
After a child receives an autism diagnosis, caregivers begin to look for appropriate services and supports. This journey requires them to navigate a very complicated service system. Caregivers are usually tasked with coordinating their children’s medical, educational, and community-based services...
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Listening is Key to Supporting Families and Caregivers and Leads to Better Outcomes
Supporting families and caregivers is a lifelong learning process as children and young adults with autism spectrum disorders (ASD) typically undergo many changes. When providing workshops to families about accessing services, I began to consider the question of how we can support them further, as...
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Supporting Caregivers During the Pandemic
The COVID-19 pandemic drastically changed the lives of many. Beginning in March 2020, many became immediately isolated, experiencing increased stress and anxiety. Parents caring for children of all ages were impacted by these variables the most. It is already known that parenting is a stressful...
