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What Families With Autism Should Consider When Evaluating School Programs
One of the greatest challenges parents of children with disabilities face is finding the most appropriate educational program. When searching for a school for a child with autism spectrum disorder (ASD), the task can be complex. Understanding instructional and social variables can help parents make...
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Pulling It All Together: How to Create a Multidisciplinary Team for Your Child With Autism
When families receive an autism diagnosis for their child, they may not realize they are also likely receiving a diagnosis for other medical and behavioral health conditions that have not yet been identified. Autism is a chronic condition that requires ongoing treatment and support. Certain...
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The Critical Role of a Caregiver in Navigating Systems of Care
No one knows your child better than you. When it comes to understanding their unique needs – you are the expert. This is critical for parents and caregivers of children with emotional, behavioral, and cognitive differences. Whether you are navigating systems of care, identifying areas of concern,...
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Awareness and Acceptance: 10 Things I Wish Everyone Understood About Autism
Twenty years ago, my daughter, Annie, was diagnosed with autism. Throughout our journey, I have learned that not everyone is aware of or fully understands her disorder, and when they see or interact with us, they may not know what to do or say. Annie is now a thriving 22-year-old, and as I...
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Paying It Forward: How a Simple Act of Kindness Can Go a Long Way
When my husband, Matt, and I set out on a quick trip to Florida with my 21-year-old daughter, Annie, who has autism and intellectual and developmental disabilities, among other differences, I had no idea how simple acts of kindness in the days to come would leave a lasting impact. We had...
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Helping Families with Disabilities Transition from Child to Adult Systems of Care
Having a child diagnosed with a lifelong disability is like planning a trip to one country, but unexpectedly arriving in a different country (read Emily Perl Kingsley’s essay Welcome to Holland). Just imagine, you have nothing packed that would make the trip easier or more comfortable, and you do...
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Creating a Summer Routine: Enriching (And Fun!) Activities for Children With Disabilities
Summer is a time of fun in the sun and making new memories. Although my children are now grown, I distinctly remember the days when they could not wait for their summer break to begin. As a parent, this time of year brought both feelings of excitement and apprehension. I wondered how I would...
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How to Advocate for Your Nonspeaking or Minimally Verbal Child or Adult
Over the last decade, there has been an increase in autistic self-advocates coming into the public eye through their incredible means to advocate for themselves - and others like them. These individuals have become a powerful voice for boards, committees, research and quality improvement...
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Supporting Teens and Adults in Becoming the Best Self-Advocate They Can
The creation of self-advocacy is a story that is one of pioneering and revolution dating back as far as 1968 (Glumbić et al., 2022). Today, many self-advocacy organizations target elevating neurodiverse voices and providing space for neurodiverse individuals to advocate for themselves. The current...
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The Importance of Proactive Sexuality Education for the Autistic Population
For most adults, an important quality of life factor is romantic/sexual relationships. Autistic individuals are no different. However, they are less likely to receive sexual education in a proactive framework than their neurotypical peers (e.g., Sala et al., 2019). When sexual education is provided...
