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Community Living in the Era of COVID-19
As we cope with the disruption of this pandemic, many of us are wondering what our new normal will look like on the other side. Before COVID-19, many people with disabilities went to day programs or had individualized 1:1 staff supporting them at work or in activities in the community. Now, because...
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No Labels on My Clothes, No Labels on Me: Why Functioning Labels Need to Be Cut Off and Tossed
Autistic folk spend an inordinate amount of time discussing the torture of labels on our clothes. In a discussion about sensory issues, right after we discuss how much we loathe the grocery store, the hatred of tags on our clothes comes up. It’s amazing how something so small, can invisibly...
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Understanding Dietary Distress, Forced Eating, and Food Deserts While Autistic
My name is Sylvia, and I’m an Autistic adult with sensory hypersensitivities that mainly affect my eating, which I’m choosing to call dietary hypersensitivities, or, more simply, food/drink hypersensitivities. For me, these hypersensitivities are oversensitivities based on any combination of...
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What I Hope People Will Get Out of My Autism Memoir
I tried to “write” my first book (or more accurately, dictate a story to parents who wrote it down on the bottom third of blank sheets of paper, leaving room for me to add illustrations later) when I was four years old. I started discussing what would become I Overcame My Autism and All I Got...
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Balancing Dignity of Risk and Embracing Opportunity During COVID-19
The United States and much of the world is currently dealing with a nightmarish pandemic. This has presented many challenges for people with developmental disabilities and those who support us to live our best lives. As we live together through this difficult time, we need to keep our eye on the...
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Call Me Autistic: A Soft Correction for Those Still Using Person-First Language
I want to tell you about the woman I am named after, my Great Aunt Betty. I never met Betty, but I got to hear about her whenever I asked where my name came from. Betty was apparently a sassy lady who, like me, despised her full name and went by her nickname, Betty. The “big” family secret...
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#DisabilityStillTooWhite: A White Autist Examines Representation in the Disability Movement
I identify as White, non-binary, neuro-queer, autistic, and disabled. I believe it is crucial to be transparent as soon as possible about (my) positionality when discussing intricate and delicate concepts (and always starting with my Whiteness to highlight how my White privilege directly and...
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Supporting Autistic Children: Much Has Been Learned Since My Childhood
Having been diagnosed on the autism spectrum as an older adult, I was certainly not aware of this condition during my childhood, nor was anyone else in my life including family, school officials, or healthcare professionals. At the time there was no public awareness about autism to speak of (it was...
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Embracing Special Interests
My special interests and I have gone through an unusual journey. I almost rejected them upon my initial reaction of dealing with life after high school and knowing the documented struggles with autistic adults. During that time, I decided to aim for work in the autism field by attending community...
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10 Strategies to Teach Your Autistic Child About Money
Let’s face it - money is essential to every single person’s life. Money is a tool that allows us to negotiate our welfare and independence in the world and has an incredible influence on anyone’s life. That being said, if it isn’t managed properly, it can quickly become an overwhelming...
