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Posts Tagged ‘advocacy’

Basic Guidelines for Choosing an Advocate for Your Child

Working with your school district to ensure your child is receiving an appropriate education can be challenging. Often parents feel they are not equal members of their children’s educational team, and that decisions are not always made with their child’s unique needs in mind. Add the...

What I Hope People Will Get Out of My Autism Memoir

I tried to “write” my first book (or more accurately, dictate a story to parents who wrote it down on the bottom third of blank sheets of paper, leaving room for me to add illustrations later) when I was four years old. I started discussing what would become I Overcame My Autism and All I Got...

#DisabilityStillTooWhite: A White Autist Examines Representation in the Disability Movement

I identify as White, non-binary, neuro-queer, autistic, and disabled. I believe it is crucial to be transparent as soon as possible about (my) positionality when discussing intricate and delicate concepts (and always starting with my Whiteness to highlight how my White privilege directly and...

United States Senator Robert Menendez Honored by the Autism Society of America with the Daniel Jordan Fiddle Foundation Leader in Adult Autism Award

On December 16th, the Autism Society of America and The Daniel Jordan Fiddle Foundation awarded New Jersey Senator Robert Menendez as the 2020 recipient of The Daniel Jordan Fiddle Foundation Leader in Adult Autism Award. “I am deeply honored to accept this award and would like to thank my...

How a Sibling Connection Inspired Advocacy and a Career

When I was nine years old, I became an advocate. We were out in public and a woman chastised my mom for being unable to control my younger brother, Joey. My blood started to boil and I was outraged by this woman’s lack of empathy. However, my mom handled the situation with poise and grace,...

With Greta Thunberg in Time’s Spotlight, Those on the Spectrum Seeing “a Profound Moment”

In just several months, Greta Thunberg, 16, has flayed international leaders, electrified climate advocates and served notice that her generation will bring new urgency to saving the planet. Her voice is forceful, her intensity unapologetic and her expressions candid. She’s also on the autism...

The Daniel Jordan Fiddle Foundation for Adult Autism Shares Its Pioneering Mission On the Global Stage in Beijing, China

On August 22-23, 2019, The Daniel Jordan Fiddle Foundation attended the International Symposium on Rehabilitation and Advocacy for Autism sponsored by the Ai You Foundation at the Crowne Plaza in Beijing, China as an invited Keynote addressee. Over the course of two days, this international...

Mentors Over White Knights – How to Support Autistic Women for Success

Like many neurotypical girls, I spent a lot of time growing up either reading or watching fairy tales in books or television. What’s peculiar about women on the Autism Spectrum is that our advocates sometimes mimic those white knights in shining armor; Meaning that someone on our care team will...

Neurodiversity – The New Normal

Over the years, many terms have been used to describe the various neurological conditions that result in developmental, cognitive and behavioral disorders. In the early days of diagnosis and treatment, diagnosis’ ranged from relatively neutral terms like Hyperkinetic Impulse Disorder, (Kimberly...

Stuck Between Two Worlds: Having a Brain that is Half Autistic and Half Neurotypical

We often talk of Neurodiversity in terms of a binary between Autistic and Neurotypical when in reality it is much more complicated. We all know Autism exists on a spectrum but commonly assume if someone is on the spectrum, they are one side of a binary line, regardless of where they fall on the...