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Paying It Forward: How a Simple Act of Kindness Can Go a Long Way
When my husband, Matt, and I set out on a quick trip to Florida with my 21-year-old daughter, Annie, who has autism and intellectual and developmental disabilities, among other differences, I had no idea how simple acts of kindness in the days to come would leave a lasting impact. We had...
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Helping Families with Disabilities Transition from Child to Adult Systems of Care
Having a child diagnosed with a lifelong disability is like planning a trip to one country, but unexpectedly arriving in a different country (read Emily Perl Kingsley’s essay Welcome to Holland). Just imagine, you have nothing packed that would make the trip easier or more comfortable, and you do...
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Creating a Summer Routine: Enriching (And Fun!) Activities for Children With Disabilities
Summer is a time of fun in the sun and making new memories. Although my children are now grown, I distinctly remember the days when they could not wait for their summer break to begin. As a parent, this time of year brought both feelings of excitement and apprehension. I wondered how I would...
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How to Advocate for Your Nonspeaking or Minimally Verbal Child or Adult
Over the last decade, there has been an increase in autistic self-advocates coming into the public eye through their incredible means to advocate for themselves - and others like them. These individuals have become a powerful voice for boards, committees, research and quality improvement...
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Making Meaningful Connections: Amy Kelly Discusses Value of Devereux’s Internal Family Support Group
At Devereux Advanced Behavioral Health, we are always looking for ways to better support our talented and hard-working team members. Devereux National Director of Family Engagement Amy Kelly, MBA, MNM, leads a family support group for Devereux employees and their significant others who are parents,...
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Planning a Summer Vacation: Travel Tips for Families of Children With Disabilities
Summer travel season is well underway. While traveling with children can be both fun and exhausting, if you are a parent or caregiver of a child with disabilities, even more planning may be required to have a safe and successful trip. This summer, I decided to take my daughter Annie on her first...
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Addressing a National Shortage of Autism Specialists
I remember the day as if it was yesterday – Wednesday, Oct. 15, 2003. It was my birthday, and I had just met with my 21-month-old daughter’s pediatrician to discuss her “global developmental delays.” In the most caring way, he told us, “You will need to see a developmental-behavioral...
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Managing Back-to-School Jitters: Tips to Help Children With Special Needs Ensure a Smooth Transition
Remember how it felt as a child before your first day of school? Perhaps you experienced butterflies in your stomach or loss of sleep the night before. You were excited to see your friends, but also nervous about what the new school year would bring. That is exactly how I am feeling about sending...
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Autism Through a Different Lens: A Sibling’s Perspective
In my profession, I often write articles from a parent’s perspective about having an 18-year-old daughter (Annie) with severe autism, and intellectual and developmental disabilities. My overarching goal with these stories is to provide compassion, understanding and hope to families, caregivers...
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COVID-19: Tips for Working From Home (And Finding Relief) With Your Children Out of School
For many parents and caregivers, working from home during COVID-19 (while your children are out of school or day care) can present unique challenges, especially if you are caring for a child with emotional, behavioral or cognitive differences. As a mother of three children, one with autism...