-
Anderson Family Partners: Extended Family, Redefined
For Colleen Contreni, Family Liaison at Anderson Center for Autism, the concept of ‘extended family’ has long inspired her work. “I have always been a very family-oriented person, and this role at Anderson is a reminder that by cultivating a spirit of kinship among parents, caregivers, and...
-
Helping Families with Disabilities Transition from Child to Adult Systems of Care
Having a child diagnosed with a lifelong disability is like planning a trip to one country, but unexpectedly arriving in a different country (read Emily Perl Kingsley’s essay Welcome to Holland). Just imagine, you have nothing packed that would make the trip easier or more comfortable, and you do...
-
Mesa, Arizona: Leading the Way as an Inclusive and Accessible Travel Destination
Mesa, Arizona has emerged as a groundbreaking destination, setting new standards for inclusivity and accessibility. With the prestigious title of being the first-ever Autism Certified City in the United States, designated by the International Board of Credentialing and Continuing Education...
-
Empowering Caregivers Through an Innovative Peer Navigator Program
After a child receives an autism diagnosis, caregivers begin to look for appropriate services and supports. This journey requires them to navigate a very complicated service system. Caregivers are usually tasked with coordinating their children’s medical, educational, and community-based services...
-
Listening is Key to Supporting Families and Caregivers and Leads to Better Outcomes
Supporting families and caregivers is a lifelong learning process as children and young adults with autism spectrum disorders (ASD) typically undergo many changes. When providing workshops to families about accessing services, I began to consider the question of how we can support them further, as...
-
Stronger Than We Think: The Advantages of Neurodiversity in the Face of Adversity
COVID-19 presents huge challenges and added layers of vulnerability for children and adults with autism and other special needs and their families. Some experience more adversity than others because of race and social class. However, it is my belief that neurodiversity has some built-in advantages...
-
A Practice Run for Air Travel
Britney Lopez would not let go of her tablet before going through security at Newark Liberty International Airport as part of AHRC New York City’s Wings for All® event. Maria Aviles, Britney’s mother, expected this would be as far as her daughter would go during a dress rehearsal for air...
-
Steps to Empower Families to Access Early Intervention
In my six years as Autism Resource Specialist in the Center for Children with Special Needs at Floating Hospital for Children in Tufts Medical Center in Boston, I have met with hundreds of families in the moments after their young child receives an autism spectrum disorder (ASD) diagnosis. Although...
-
Autism Speaks Asperger Syndrome and High Functioning Autism Tool Kit
In March 2010, Autism Speaks, North America's largest autism science and advocacy organization, launched the Autism Speaks Asperger Syndrome and High Functioning Autism Tool Kit (AS/HFA Tool Kit). The AS/HFA Tool Kit was created specifically to assist families in getting the critical information...
