Posts Tagged ‘parents’

Autism Through a Different Lens: A Sibling’s Perspective

In my profession, I often write articles from a parent’s perspective about having an 18-year-old daughter (Annie) with severe autism, and intellectual and developmental disabilities. My overarching goal with these stories is to provide compassion, understanding and hope to families, caregivers...

How to Best Support Siblings of Individuals with ASD

Typically developing siblings of individuals with autism spectrum disorders (ASD) have a unique set of needs that often go overlooked and unnoticed. These needs are generally social and emotional in nature and can affect siblings at any age during their lifespan. When one family member has a...

Guidelines for Parents on Addressing the Needs of Siblings

There is little doubt that those of us raised with siblings have been influenced by that relationship. Living with a brother or sister with an autism spectrum disorder adds more significant and unique experiences to that relationship. Throughout numerous accounts of parents and siblings of children...

Helping Parents Address Challenging Behaviors During These Challenging Times

There is a clear consensus that children with disabilities are the most vulnerable to both short- and long-term effects of COVID-19 (United Nations, 2020). This is particularly true for children with Autism Spectrum Disorder (here forward autism) for whom the sudden disruptions in educational and...

Utilizing Digital Media to Enable Continuity of Autism Services

For over a decade there has been an abundance of professional articles and seminars on the potential of telehealth and distance learning services. Outside of the medical world, the movement of state licensing bodies and insurance payers to permit use of telehealth services by licensed behavioral...

A Unique Program to Support Autism Educators During COVID-19 Distance Learning

The COVID-19 crisis has led to unprecedented school closures and a rapid transition to distance education which severely disrupted educational services for students on the autism spectrum. Distance learning will likely continue beyond the acute crisis as social distancing efforts persist. The...

Assembling an Emergency Toolkit for Children with Disabilities

In the journey of parenthood, one of the most challenging things caregivers of children can encounter are the inevitable injuries and emergencies. Last year, I had to take my daughter, Annie – who has autism and intellectual and developmental disabilities – to the emergency room (ER). Going...

Why Autism Parents Say: “I Can Never Die”

The caregiving workforce shortage is and will be a crisis for so many Americans. “I can never die.” This is the rallying call of autism parents everywhere. Why do we feel that way? Because many autistic adults live with their parents—85%, according to autism researcher Peter Gerhardt....

A Group-Format Parent Training Program to Improve Communication Skills in Young Children with ASD

The first few years of life are an important period for communication and language development. Even before the emergence of spoken language, typically-developing children engage in communicative interchanges with caregivers through gaze, directed facial expressions, gestures, and vocalizations....

Parental Age Ups Rate of New Mutations Passed to Children

Men and women both transmit an increasing number of new mutations to their children as they age, according to a study published recently in Nature (Jónsson H. et al., 2017). The finding is based on an analysis of whole genomes from nearly 5,000 people. The increase in these ‘de novo’ mutations...