Is It Genetic? My 40-Year Journey of Misdiagnoses for My Son

• By: Ellen Feldman Arc of New York
• January 2nd, 2023
• co-occurring conditions, community support system, diagnosis, genes, genetic testing, incidence, rare genetic disorder, survey, SYNGAP1, testing, treatment trials, Winter 2023 Issue
• 2474    1

Forty years ago, my son Matthew was born. At the time of his birth, he had no apparent health issues. We began noticing that he wasn’t developing like a neuro-typical child when he wasn’t hitting milestones like rolling over. Since then, we have gone through countless tests and been given...

Addressing Abuse of Children and Adults on the Autism Spectrum

• By: Nora Baladerian, PhD Disability Without Abuse Project
• July 19th, 2022
• abuse, communication, incidence, Summer 2022 Issue, trauma, trauma treatment
• 4098    1

Parents and caregivers who work directly with individuals (children and adults) with an autism spectrum disorder diagnosis are in most cases overwhelmed with the impact and difficulties they face in accommodating to the reality they and their child face when learning of the diagnosis. I will not...