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Archive for the ‘Advocacy’ Category

Addressing the Lack of Attention Given to Autism and Mental Health Services in the South Asian Community

As the South Asian community is growing in the United States, so is the focus on the community’s needs and concerns, with mental health being one of the major needs. Such needs often go unspoken due to social taboos and hesitation. The same holds true for the issues related to developmental...

Autism Science Foundation Hosts Autism Community’s First TED-Style Talks

On April 10, 2014, the Autism Science Foundation celebrated its fifth anniversary by hosting a Day of Learning and an Evening of Celebration at the Yale Club of New York City. For the Day of Learning, ASF presented the autism community’s first TED-Style Talks, which were given by nine experts in...

Advocating for a Student-Centered Approach in Special Education

Autism Spectrum Disorder is on the rise. Autism Spectrum Disorder is on the rise? While pondering over information found on the National Institute of Mental Health website (www.nimh.nih.gov), one cannot help but fluctuate between statement and question. The latest edition of the diagnostic manual...

Autism Paradox and the Broken (Special) Education System

YouTube and the Internet have provided a boost for my 14-year-old autistic son, where his public school has failed to educate him. Technology has empowered Fridrik to explore his curiosity, while expands his intelligence. Using the 1990s cartoon series Dexter’s Laboratory and its 78 episodes...

Bringing Autism Insurance Mandates into Compliance with the Affordable Care Act

When care isn’t taken, grave problems can arise when a state’s autism insurance mandate is brought into compliance with the ACA. Starting in 2014, “dollar value” limits for essential health benefits are not allowed per the Patient Protection and Affordable Care Act, more frequently called...

Disclosing an ASD Diagnosis: There is Another Option

You are on the spectrum and searching for jobs. You’ve prepared your resume, practiced interview skills, written cover letters, applied for jobs. You also might have considered whether or not to disclose your diagnosis. If you were diagnosed as a child, then, growing up everyone around you...

Cut Out for Him: A Father on His Son’s Employment Future

My 15-year-old son Alex (diagnosed PDD-NOS) goes to a special-needs school where some students are old enough to work. A few years ago Alex’s teacher told me about when she approached a local thrift shop about students volunteering there. “We don’t hire the handicapped,” the clerk...

Funding Home Programs and Private Schools – Possible, Yes! Easy? Not Exactly

You have learned that your child requires intensive intervention and educational services. A school district may provide your child with the services your child requires on the IEP. To help support your request for an intensive (and what is oftentimes, costly) educational program, provide your...

The Massachusetts Autism Commission’s Report: Recommendations to Create a Comprehensive Autism Service System

The bill creating the Massachusetts Autism Commission was signed into law by Governor Deval Patrick in April 2010. Membership was required by law to consist of four members of the Massachusetts state legislature, fourteen representatives from state agencies, and fourteen citizen members including...

What is Normal?

Nearly every day someone asks me something like, “When did you know that Jack wasn’t normal?” And then they stop themselves, stammer a bit, and apologize for saying normal. Their faces turn all red and they look away and stare at their feet. “I mean, you know, what’s normal, there is no...