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What is Normal?
Nearly every day someone asks me something like, “When did you know that Jack wasn’t normal?” And then they stop themselves, stammer a bit, and apologize for saying normal. Their faces turn all red and they look away and stare at their feet. “I mean, you know, what’s normal, there is no...
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How to Improve the Public Special Education System: Empowering Parents, Educators and Treatment Providers
The Special Education system in New York City is an ever-evolving work in progress, and any shortcomings of the current system might be excused by the difficulty of the task at hand and/or the relatively short time-frame the system has had to evolve. Other challenges include changes in the...
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The Real Priorities in Advocacy – Keeping the Whole Child, the Whole Family and the Big Picture in Mind
In my observation, an effective Autism Advocate is someone who is often isolated from the rest of the “typical” society because they are the parent of a child with Autism, which is a 25 hour a day job. They become consumed in caring for their child on top of their other life duties such as...
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The Critical Importance of Advocacy and Government Relations
The term “advocacy” often elicits many different thoughts. The actual word “advocacy” is defined as “the act or process of supporting a cause or proposal.” We advocate all the time, and for many different things. Most are very worthwhile causes, and others are perhaps more trivial (have...
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The Daniel Jordan Fiddle Foundation’s Latest Signature Programs Focus on Supporting by Educating Adults Living with Autism
The Daniel Jordan Fiddle (DJF) Foundation has entered its second decade of developing, advocating for and funding unique and groundbreaking initiatives that benefit the lives of adults living with autism spectrum. Exciting new collaborations with the nation’s leading advocacy organizations and...
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How to Effectively Advocate for Your Child’s Transition with Your School District
Parents of children diagnosed on the autism spectrum are often concerned about their child’s transition from the structured environment of a school-based program to the post-secondary world and all of the hurdles that transition entails. A student’s Individualized Education Plan (IEP) is the...
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What Do You Do When Relatives Don’t Believe the Diagnosis and Question Your Parenting?
“Give him time.” “She’s the last child born in the family; everyone does the talking for her.” “Your expectations are too high, every child has his/her own timetable.” “Don’t put him under a microscope. Relax and he will be fine.” “When I had my kids, the world was...
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Autism Speaks Asperger Syndrome and High Functioning Autism Tool Kit
In March 2010, Autism Speaks, North America's largest autism science and advocacy organization, launched the Autism Speaks Asperger Syndrome and High Functioning Autism Tool Kit (AS/HFA Tool Kit). The AS/HFA Tool Kit was created specifically to assist families in getting the critical information...
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Assisting Parents in the Struggle to Access Science-Based Information and Treatments for their Children with ASD
Families of children who receive a diagnosis of an autism spectrum disorder (ASD) are faced with profound challenges, and many feel a tremendous burden (Mulligan, Steel, Macculloch & Nicholas, 2010). The time of diagnosis may represent a pivotal point for both the child and the individuals...
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Parent Voices Drove Autism Certification Standards
It was a VERY troubling message” says Paul Andrew, remembering what he heard from a group of autism parents, advocates, and providers about the state of social services for people with autism in 2005. And it moved him to action. As Managing Director of Community Services for the accrediting...
