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Supporting Teens and Adults in Becoming the Best Self-Advocate They Can
The creation of self-advocacy is a story that is one of pioneering and revolution dating back as far as 1968 (Glumbić et al., 2022). Today, many self-advocacy organizations target elevating neurodiverse voices and providing space for neurodiverse individuals to advocate for themselves. The current...
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This is What Autistiphobia Looks Like: Why Autistic Advocacy Matters
The Researcher A lot of people do not like Autistic people. Which is a common topic in Autistic spaces. But many allistics who want to advocate with us, as allies, stop talking to me when I mention attitudinal barriers to accessibility. Or else they find creative ways to avoid the...
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Autism Advocacy: Inclusion, Empowerment, and Human Rights
“Autism isn’t this strange alien thing, it’s just a different way of thinking and experiencing the world. Some of us will find ourselves more or less compatible with modern living than others, we will all have different needs…but autism is not terrifying or awful, nor is it marvellous and...
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Advocating for the Advocate
Experiencing a life-changing event is one of the reasons people start advocating. For autistic people, advocating can mean stepping so far out of their comfort zone socially, it feels like they’ve lost sight of it. As for myself, I went from feeling invisible most of my childhood, to talking in...
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The Unique Responsibility of Neuroexpansive Minds for Cultural Inclusion
As an advocate for those with neuroexpansive minds in bodies that have become commodified bodies, I have come to understand, over the years, that a piecemeal approach to the valuing of difference and extensions of freedoms for all designated expendable in modern culture depends on every such...
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Advocacy on Behalf of Less-Impaired Autistics
In the more than two decades since my diagnosis, I have attended countless autism community events of just about every kind, not to mention numerous others in which issues concerning autism somehow came up. In virtually all of these, I routinely disclosed that I was on the autism spectrum and on...
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Autistic Lived Experience: When I Learned that Helen Keller Believed in Eugenics
To say that learning about this for the first time felt like a punch in the gut is a gross understatement. Though I heard it from what I consider to be a credible source (the PBS documentary series The U.S. and the Holocaust), I nonetheless could not bring myself to believe the truth because I...
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Using Storytelling as a Self-Advocacy Tool
I have always tried to advocate for myself, but I noticed from a very young age that I had difficulties doing so verbally. It takes a while for me to organize my thoughts to be able to speak, and I often say that even though my speaking and writing comes from the same brain, it seems like...
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Autism Without Fear: A Major Flaw in College Autism Programs
I currently run New York University’s (NYU) Connections Program for Global Students with Autism. But I’m relatively new to higher education. I have a much longer history as a consultant, writer, and Executive Director, and back when my non-profits were engaging in the political battles of the...
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Putting My Lived Experience to Good Use
As an autism self-advocate, I wear many hats: writer, public speaker, advisor, educator. One of my roles is LEND Program Faculty at Boston Children’s Hospital and UMass Boston’s Institute for Community Inclusion. The LEND Program (an acronym for Leadership Education in Neurodevelopmental and...
