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Essential Information: Respite Care for Families
Many individuals with Autism Spectrum Disorder (ASD) require significant levels of support in home, school, and community settings. Due to deficits in social communication and interaction, compounded by restricted, repetitive patterns of behavior, many will not be able to keep themselves safe and...
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Evidence-Based Practice for Very Young Children with Autism: Delivering Family-Centered Services within a Community Programs
Evidence from randomized controlled trials supports the efficacy of naturalistic developmental behavioral interventions (NDBIs; Schreibman et al., 2015) for young children with autism spectrum disorder (ASD). The Early Start Denver Model (ESDM; Rogers & Dawson, 2010) and Early Social...
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Some Key Issues in Reducing Caregiver Stress: Future Planning for the Family Member
Over the last several years, a lot of focus and attention has been given to the very important topics of transition planning and services into adulthood for those with autism and intellectual disabilities. Supporting families, caregivers and the adolescent/adult child in connecting with adult...
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The Newborn and the Child with Autism: The Advice is the Same
As a parent with a 25-year-old son with autism, I am often asked what advice I would give to parents with a newly diagnosed child. My response is the same advice I give to new mothers as a nurse on the maternity unit. Parental emotional adjustment to a new baby is analogous to the adjustment to...
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What Parents of Children with Autism Should Know About Abuse
It is true that parents of children and adults with ASD, if asked, will admit to having long-held fears that their child may become a victim of abuse. However, it is also true that when I have provided classes for parents of young and adult children with autism at Los Angeles-based Regional Centers...
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“It’s All My Fault!” Understanding Guilt in Parents of Children with ASD
Guilt is a powerful emotion. It has both motivating and destructive effects. It can be seen as a moral conscience, directing us toward doing the “right thing.” Imagine a society where there was no sense of moral guilt - this could lead to a situation where there is anarchy. Our guilt allows us...
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How Supported Decision-Making Can Help Family Caregivers
Individuals with autism should have a choice in what happens to them throughout their lives. Too often, parents of children and adults with autism, intellectual, or developmental disabilities are advised – and often when their child is very young, long before it is possible to predict their...
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The Role of the Caregiver in Enhancing Job Skills in Individuals with ASD
When parents think of what they want for their children, a fulfilling job is often included in their answer. Many caregivers want to see that their loved one can not only obtain a job, but maintain it long-term. This tends to be particularly difficult for those on the autism spectrum, as research...
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“The Lighter Side of the Spectrum – a Mom’s View” Will He Live on His Own?
Rarely a week goes by when I don’t wonder if my son, Jack, will ever be able to live on his own. I mean, that’s what kids do, right? They keep you up at night and drink all your milk and leave their wet, muddy boots all over the kitchen floor and cost you a bajillion dollars and then, at some...
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Blurred Lines – In Support of a Broader Interdisciplinary Model
It’s 6:00 PM on a Tuesday and Lindsey is taking her kids to swim practice. In the back seat they’re talking excitedly about whatever the new game is while struggling to share an iPad, worn out from the day of school but excited for the evening ahead. Meanwhile, Lindsey is thinking about RSVPs...
