Perkins School for the Blind Transition Center

Archive for the ‘Family, Parents, and Caregivers’ Category

What Families With Autism Should Consider When Evaluating School Programs

One of the greatest challenges parents of children with disabilities face is finding the most appropriate educational program. When searching for a school for a child with autism spectrum disorder (ASD), the task can be complex. Understanding instructional and social variables can help parents make...

The Critical Role of a Caregiver in Navigating Systems of Care

No one knows your child better than you. When it comes to understanding their unique needs – you are the expert. This is critical for parents and caregivers of children with emotional, behavioral, and cognitive differences. Whether you are navigating systems of care, identifying areas of concern,...

Facilitating Health Care Visits: How Can We Prepare for a Therapeutic Visit?

Health care visits can be challenging for individuals with autism and the delivering providers. It is critical that we prepare both the individual and the provider to increase the integrity of the visit and ensure a successful outcome. When I took on my role as Senior Director of Healthcare...

Cruising Tips for a Fun Autism Friendly Family Vacation

Do you wish you could go on a family vacation but think it’s too hard to manage with a child on the autism spectrum? With proper planning, a cruise can be a great way to combine fun and predictability for the perfect autism friendly family vacation. As a mom of children on the spectrum,...

Advocating for Sensory-Inclusive Education: IEPs, Classrooms, and Schools

There are many lists and suggestions for sensory-inclusive education for autistic students. Gaining a sense of your student’s unique sensory profile – what causes distress or helps them stay regulated – is important. They may be impacted differently at school than at home. How can a caregiver...

Navigating Autistic Burnout as an Autistic Parent

Being an autistic parent is hard. When your kids are also neurodivergent, this can make life even more challenging when trying to navigate everyone’s complex, often diametrically opposed needs. When we need space, a lot of the time our children need connection and closeness, and we can become...

Anderson Family Partners: Extended Family, Redefined

For Colleen Contreni, Family Liaison at Anderson Center for Autism, the concept of ‘extended family’ has long inspired her work. “I have always been a very family-oriented person, and this role at Anderson is a reminder that by cultivating a spirit of kinship among parents, caregivers, and...

Your Child Has Just Been Diagnosed with Autism – Now What?

Every family has their own personal journey towards an autism diagnosis for their child. Whether it brings the confirmation of what may have been suspected or the news of something completely unexpected, the diagnosis of autism spectrum disorder can have a significant impact on a family. Like the...

Supporting Families to Prepare Students to Be Participating Members of Their Community

For over five decades, I’ve had the privilege of serving students with autism and developmental disabilities and their families. I’ve been employed as a teacher, administrator, professor, consultant, and advocate in public, private, nonprofit, and for-profit settings, working in preschools,...

Helping Families with Disabilities Transition from Child to Adult Systems of Care

Having a child diagnosed with a lifelong disability is like planning a trip to one country, but unexpectedly arriving in a different country (read Emily Perl Kingsley’s essay Welcome to Holland). Just imagine, you have nothing packed that would make the trip easier or more comfortable, and you do...