-
Rates of Autism Increase, But Numbers Don’t Paint the Full Picture
Headlines over the past 20 years have signaled ever-increasing recognition of autism spectrum disorder (ASD). Now, in a new article published in Autism, our team describes our own estimates of how many children across Children’s Hospital of Philadelphia’s (CHOP) Primary Care Network have been...
-
An Overview of the Screening and Diagnosis of Autism Spectrum Disorder in Children
Diagnosing autism spectrum disorder (ASD) can be difficult because there is no medical test, like a blood test, to diagnose the disorder. Doctors look at the child’s developmental history and behavior to make a diagnosis. ASD can sometimes be detected at 18 months of age or younger. By age...
-
The Importance of Telediagnostics in ASD Diagnosis and Treatment
The COVID-19 pandemic brought significant challenges and opportunities for psychologists conducting diagnostic evaluations for people with suspected autism spectrum disorder (ASD). While there had been research on telediagnostics for ASD, at the start of the pandemic these procedures had not been...
-
I Was Finally Diagnosed with High-Functioning Autism, Now What?
I suspected I was on the Autism Spectrum for over 20 years before I finally received a diagnosis. Like many people with high-functioning autism, my autism went unnoticed because I was intelligent enough to succeed in school and my autistic traits were not seen as neurodivergent, but as learning...
-
Late-Diagnosed Autism and Camouflaging in People Assigned Female at Birth
It is becoming increasingly understood that there are marked differences in autism between genders. This has led to people assigned female at birth (AFAB) to being diagnosed in adolescence or adulthood at a higher rate compared to people assigned male at birth (AMAB) (Wood-Downie et al., 2020). I...
-
Next Steps After an Autism Diagnosis: Acceptance, Advocacy, and Treatment Options
The road to diagnosis can be long and uncertain. For some, the news of diagnosis brings validation and hope. For others, it can lead to even more uncertainty. In either situation, it is important to seek support and guidance to navigate a path forward. It can be difficult to muddle through all of...
-
Is It Genetic? My 40-Year Journey of Misdiagnoses for My Son
Forty years ago, my son Matthew was born. At the time of his birth, he had no apparent health issues. We began noticing that he wasn’t developing like a neuro-typical child when he wasn’t hitting milestones like rolling over. Since then, we have gone through countless tests and been given...
-
A Call to Action: The Need for Advocacy in Healthcare Access in Autism
Although specific estimates vary substantially, autistic children and adults have a higher prevalence of comorbid medical conditions than those reported in non-autistic individuals. Among the most commonly reported comorbid medical conditions are neurological disorders, including epilepsy,...
-
Understanding, Diagnosing, and Treating Catatonia in Individuals with Autism Spectrum Disorders
Catatonia is a distinct cluster of mood, motor, vocal and affective disorders once thought to be solely a specifier for various psychotic and mood disorders. It is now recognized in the Diagnostic and Statistical Manual of Mental Disorders (5th edition; DSM-5; American Psychiatric Association,...
-
Ehlers-Danlos Syndrome and Its Comorbidities as a Co-Occurring Health Issue in Autistic People
Ehlers-Danlos Syndrome (EDS) occurs in as many as 8% of autistic individuals with even a higher percentage that may have hypermobility spectrum disorders (HSD) (Cederlof et al., 2016, Kindgren et al., 2021). This estimate is low since EDS is more commonly diagnosed in females (Castori, 2012), who...
