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In Genetic Diagnosis, a Path Forward – Discovering Their Son’s Genetic Diagnosis Helps One Family in Many Ways
By the time her son Curren was 3 months old, Nerissa Ramsey knew there was something different about him. He had low muscle tone and flapped his hands. Hand-flapping is a repetitive behavior commonly seen in autism. After consulting with a series of specialists, the Ramsey family was referred to...
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“Labels Do Not Describe Me” Gender Identity Among Women on the Autism Spectrum
A large number of women with Autism Spectrum Disorder (ASD) are currently undiagnosed or misdiagnosed. In the United States, for every four males diagnosed with ASD, only one female is diagnosed (Centers for Disease Control and Prevention, 2012). While there is likely to be a true sex difference in...
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The Unique Needs of Women and Girls with Autism
My own experience perhaps gives an insight into the repeatedly similar tales I hear from other autistic women and parents of girls. I came to the field of autism via employment in education and then as Training Manager of a specialist Asperger mentoring project for young people. By this point,...
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How Autism Manifests Differently in Girls: What Families Need to Know
According to the Centers for Disease Control and Prevention (CDC), in 2010 The Autism and Developmental Disabilities Monitoring (ADDM) Network released data that showed “ASD prevalence…was 4–5 times higher among boys than girls” (http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6302a1.htm)....
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What Happened to All the Females with Autism Spectrum Disorders?
The concept of an autistic disorder is generally accepted to have originated with Leo Kanner and his classic 1943 account of ‘Autistic Disorders of Affective Contact’ (Kanner, 1943). He described 11 children with what would now be regarded as severe autism. Three of these 11 were girls, and as...
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Keeping It Together When Faced with an Autism Diagnosis
Your child has been diagnosed with Autism…now what? Many parents feel as though they are finally able to answer some of the questions they have had regarding their child, but still feel confused, overwhelmed, and frightened about what to do next. Parents are their child’s best advocate and have...
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“The Lighter Side of the Spectrum – a Mom’s View” Because of You
I almost lost my marriage because of you. It was the year my son named Jack was born, and you were born right along with him. At first, we had no idea. He was just a squirming chubby baby who didn’t sleep too well and hated to be swaddled and cried a little more than we expected. Slowly, you...
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Adults on the Autism Spectrum: An Unidentified and Forgotten Population
Among all those on the autism spectrum, adults get the least media attention and receive the fewest services, supports, and resources of any kind. This is ironic when one considers that adulthood constitutes most of the human lifespan, so that the vast majority of individuals with autism clearly...
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8 Things I Wish I Knew Before My Autism Diagnosis at 22
At the age of twenty-two, I was diagnosed with high-functioning autism, commonly known as “Asperger’s Syndrome.” On the autism spectrum, high-functioning individuals with autism generally don’t have developmental delays that are common in other parts of the spectrum. High-functioning autism...
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Screening for Autism in an Adult Psychiatric Facility
Three years ago, the CEO of Oglethorpe, Inc., John Picciano, LCSW, sat snoozing in the back of the room while listening to a presentation at a National Association of Social Workers (NASW) Conference called, “Autism, Asperger’s and the Culture of Neurodiversity.” Somewhere in the middle of...