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What Happens When One Twin Has Autism
When my twins were born prematurely on December 26th, 1990, nobody talked about autism. There was no internet and autism support groups did not yet exist. Caring for two premature babies was overwhelming enough, but the dawning recognition that our daughter Samantha was not developing at anything...
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The Critical Need for Tracing Individual Trajectories After an Early Diagnosis of Autism
Autism Spectrum Disorder (here forward referred to autism) is more commonly recognized at early ages (Zwaigenbaum, Bauman, Choueiri, et al., 2015). This has led to increased access to early intervention and special educational supports, which in turn provide opportunities to better long-term...
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The Siblings of Autism
About a million years ago, a kind doctor told me the best thing we could do for Jack was to give him siblings. A lot of people ask me how we decided to have more kids once we knew something was up with him. I wish I had a more sophisticated answer to give, but the truth is, we just didn’t know...
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How a Sibling Connection Inspired Advocacy and a Career
When I was nine years old, I became an advocate. We were out in public and a woman chastised my mom for being unable to control my younger brother, Joey. My blood started to boil and I was outraged by this woman’s lack of empathy. However, my mom handled the situation with poise and grace,...
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Programming for Multiple Siblings with ASD: Tips to Promote Family Success
Current data suggest that if a family has one child with Autism Spectrum Disorder (ASD), the chance their second child will also have that diagnosis is 2-18% (Autism Speaks, 2020). If the family has two or more children with ASD, the risk their next child will also have ASD increases to 30% (The...
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Talking to Siblings About ASD
Siblings of children with Autism Spectrum Disorder (ASD) have unique needs and may have a range of feelings, both positive and negative, about their experience with their brother or sister with ASD. They may be reluctant to share these feelings with parents due to feelings of guilt (Opperman &...
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Considerations in Diagnostic Assessment of Females for Autism Spectrum Disorder
The literature suggests that autism spectrum disorder (ASD) may go undiagnosed in females who do not have intellectual and/or language impairment (e.g., Mandy et al, 2012). Research on differences in ASD symptom presentation in females versus males is not yet well-developed and findings across...
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Presentation of Autism Spectrum Disorder in Females: Diagnostic Complexities and Implications for Clinicians
Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by pervasive deficits in social communication and patterns of restricted, repetitive, stereotyped behaviors and interests (American Psychiatric Association, 2013). Beyond the main diagnostic criteria, however, there is...
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A Shift Towards Better Understanding and Improving the Lives of Girls and Women With ASD
It has been widely established that females are less frequently diagnosed with autism spectrum disorder (ASD) than males. On average, prevalence of ASD is four times higher in males than in females (Baio et al., 2018). This ratio appears to be an inaccurate representation of prevalence by...
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Different is My Identifier
I was eight years old the first time I remember being aware of my difference. It didn’t have a name yet, that was still decades away, but nonetheless, suddenly at the ripe old age of eight, I was cognizant of that I was indeed different. For the seven years of life prior to that, I happily lived...
