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What Happens When One Twin Has Autism
When my twins were born prematurely on December 26th, 1990, nobody talked about autism. There was no internet and autism support groups did not yet exist. Caring for two premature babies was overwhelming enough, but the dawning recognition that our daughter Samantha was not developing at anything...
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The Siblings of Autism
About a million years ago, a kind doctor told me the best thing we could do for Jack was to give him siblings. A lot of people ask me how we decided to have more kids once we knew something was up with him. I wish I had a more sophisticated answer to give, but the truth is, we just didn’t know...
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The Critical Need for Tracing Individual Trajectories After an Early Diagnosis of Autism
Autism Spectrum Disorder (here forward referred to autism) is more commonly recognized at early ages (Zwaigenbaum, Bauman, Choueiri, et al., 2015). This has led to increased access to early intervention and special educational supports, which in turn provide opportunities to better long-term...
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Talking to Siblings About ASD
Siblings of children with Autism Spectrum Disorder (ASD) have unique needs and may have a range of feelings, both positive and negative, about their experience with their brother or sister with ASD. They may be reluctant to share these feelings with parents due to feelings of guilt (Opperman &...
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Girls and Autism: Overcoming the Gender Gap to Ensure Best Outcomes
The Centers for Disease Control (CDC) estimates that 1 in 59 children has autism spectrum disorder (ASD), with boys being four times more likely to be diagnosed than girls (Mandy et al., 2012). Recently, through a meta-analysis of epidemiological studies, it was concluded that the true ratio may be...
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Different is My Identifier
I was eight years old the first time I remember being aware of my difference. It didn’t have a name yet, that was still decades away, but nonetheless, suddenly at the ripe old age of eight, I was cognizant of that I was indeed different. For the seven years of life prior to that, I happily lived...
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Presentation of Autism Spectrum Disorder in Females: Diagnostic Complexities and Implications for Clinicians
Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder characterized by pervasive deficits in social communication and patterns of restricted, repetitive, stereotyped behaviors and interests (American Psychiatric Association, 2013). Beyond the main diagnostic criteria, however, there is...
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A Shift Towards Better Understanding and Improving the Lives of Girls and Women With ASD
It has been widely established that females are less frequently diagnosed with autism spectrum disorder (ASD) than males. On average, prevalence of ASD is four times higher in males than in females (Baio et al., 2018). This ratio appears to be an inaccurate representation of prevalence by...
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Considerations in Diagnostic Assessment of Females for Autism Spectrum Disorder
The literature suggests that autism spectrum disorder (ASD) may go undiagnosed in females who do not have intellectual and/or language impairment (e.g., Mandy et al, 2012). Research on differences in ASD symptom presentation in females versus males is not yet well-developed and findings across...
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Navigating Neurodiverse Relationships: Disclosure and Self-Advocacy
If you are an adult who has had a longstanding diagnosis of ASD or a newly diagnosed individual, then you probably grapple with these ongoing decisions: If and when to disclose your diagnosis to others The pros versus the cons of disclosure How to go about sharing this information with...
