Posts Tagged ‘family’

Under Pressure: Support for Siblings of Individuals with ASD

As a school-based mental health professional and a sister of a person with autism spectrum disorder (ASD), the sibling perspective on family-centered care is not just important to me, but necessary in order to give comprehensive and competent care to the families who look to communities and schools...

Autism Through a Different Lens: A Sibling’s Perspective

In my profession, I often write articles from a parent’s perspective about having an 18-year-old daughter (Annie) with severe autism, and intellectual and developmental disabilities. My overarching goal with these stories is to provide compassion, understanding and hope to families, caregivers...

How a Sibling Connection Inspired Advocacy and a Career

When I was nine years old, I became an advocate. We were out in public and a woman chastised my mom for being unable to control my younger brother, Joey. My blood started to boil and I was outraged by this woman’s lack of empathy. However, my mom handled the situation with poise and grace,...

Preparing Children with ASD for New Siblings

Introducing a new baby is a wonderful, joyous time for a family. When preparing children with Autism Spectrum Disorder (ASD) for a new sibling, your approach may need to begin long before the new baby arrives. According to the Diagnostic and Statistical Manual of Mental Disorders (DSM-5),...

How to Best Support Siblings of Individuals with ASD

Typically developing siblings of individuals with autism spectrum disorders (ASD) have a unique set of needs that often go overlooked and unnoticed. These needs are generally social and emotional in nature and can affect siblings at any age during their lifespan. When one family member has a...

Supporting Siblings is a Family Affair: Thoughts From an Insider to Help Guide the Conversation for Best Outcome

The impact of having a child with a disability extends far beyond that individual and impacts the parents and siblings over the course of the family’s lifetime (Harris & Glasberg, 2003: Powell & Ogle, 1985). Developmental disabilities are certainly not universal in how they impact the...

Guidelines for Parents on Addressing the Needs of Siblings

There is little doubt that those of us raised with siblings have been influenced by that relationship. Living with a brother or sister with an autism spectrum disorder adds more significant and unique experiences to that relationship. Throughout numerous accounts of parents and siblings of children...

Talking to Siblings About ASD

Siblings of children with Autism Spectrum Disorder (ASD) have unique needs and may have a range of feelings, both positive and negative, about their experience with their brother or sister with ASD. They may be reluctant to share these feelings with parents due to feelings of guilt (Opperman &...

Adult Sibling Support

Siblings often have the longest-lasting relationships of their lives with each other. With this lifelong connection, siblings have a great opportunity to support each other. In families where a person has a disability, the roles that siblings play may be different – not only in childhood and...

Sheltering at Home with My Brother Douglas During COVID-19

After the death of my mother I became my brother Douglas’ legal guardian and sole relative who would advocate for, protect and welcome him every weekend and holiday. The only time he was not able to come to me was when there was an epic snowstorm preventing travel, when I was sick, injured and or...