-
Autistic Lived Experience: When I Learned that Helen Keller Believed in Eugenics
To say that learning about this for the first time felt like a punch in the gut is a gross understatement. Though I heard it from what I consider to be a credible source (the PBS documentary series The U.S. and the Holocaust), I nonetheless could not bring myself to believe the truth because I...
-
A Call to Action: The Need for Advocacy in Healthcare Access in Autism
Although specific estimates vary substantially, autistic children and adults have a higher prevalence of comorbid medical conditions than those reported in non-autistic individuals. Among the most commonly reported comorbid medical conditions are neurological disorders, including epilepsy,...
-
Using Storytelling as a Self-Advocacy Tool
I have always tried to advocate for myself, but I noticed from a very young age that I had difficulties doing so verbally. It takes a while for me to organize my thoughts to be able to speak, and I often say that even though my speaking and writing comes from the same brain, it seems like...
-
“Putting Me in My IEP”: Encouraging Self-Advocacy in Younger Students
Parents and guardians may not know that students can participate in their Individualized Education Program (IEP) team meetings at any age and not just during post-secondary transition planning in high school. In describing the IEP team, the Individuals with Disabilities Education Act states “the...
-
Putting My Lived Experience to Good Use
As an autism self-advocate, I wear many hats: writer, public speaker, advisor, educator. One of my roles is LEND Program Faculty at Boston Children’s Hospital and UMass Boston’s Institute for Community Inclusion. The LEND Program (an acronym for Leadership Education in Neurodevelopmental and...
-
Autism Spectrum News Honored by the Autism Society of America with The Daniel Jordan Fiddle Foundation Leader in Adult Autism Award
The Autism Society of America is thrilled to announce David Minot, Founder and Publisher of Autism Spectrum News and Executive Director of Mental Health News Education, as the recipient of the prestigious 2022 Daniel Jordan Fiddle Foundation Leader in Adult Autism Award, presented at the 2022...
-
Student with Autism Proposes Colleges Provide More Support Enabling People with Disabilities to Earn a Degree AHRC NYC: Program Fuels Desire to Help Others Pursue Higher Education
AHRC NYC Program Fuels Desire to Help Others Pursue Higher Education Meghan Mattei models herself after pioneers such as Erin Brockovich and Temple Grandin. “I want to be a self-advocate and advocate for children and adults with disabilities,” she says. “I will fight for our...
-
Developing Confidence and Standing Up for Myself
After I lost my mom to dementia, I had very little confidence in myself. I had no voice. People would express their opinions and I would never tell others my perspective because I had no confidence. I could not stand up for myself. If I tried, I would wind up crying instead. I let myself get...
-
Making a Case for the IEP Diploma When It Comes to Employment
I was the girl who was afraid of her own shadow. I was afraid of a lot of things. I was afraid about what people might think. People always doubted me. I was too nervous to speak in front of people. I would never go on stage. I was afraid to do anything. A school social worker once told my...
-
“Infinite Solution Finders:” AHRC New York City’s Educational Advocacy Guides Parents of Students with Disabilities
Rosemeri Linares embraced the challenges and the need for knowledge when she found out her son Adrian was on the spectrum. “Adrian was diagnosed with autism a little before he turned two. I had to quickly learn all the things that come with having a child with a disability,” she recalled. “I...
