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Freeing the Mind: A Nonspeaking Autistic’s Case for Presuming Competence
Many nonspeakers are still locked in the prison of their own mind. Nonspeakers are underestimated because our bodies and brains are disconnected. Our minds work, but not with our body, so people conclude we are unintelligent. Apraxia is not well understood by parents, teachers, therapists, and the...
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The Right to Learn: One Nonspeaking Autistic Student’s Case for Educational Access and Dignity
Beginning as a small child, school is where you make friends and learn to process the world around you. Most of modern society is formed on the basis that people have received a formal education. Whether that education be from primary to high school, or onward to a college education, it is presumed...
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Very Great Sound: The Case for Teaching Poetry to Nonspeaking Autistic Students
Last April, I found myself in a Stockholm studio, sitting next to my college buddy Spencer Reece, with whom I'd taken my first creative writing course forty-three years ago—our teacher was the Pulitzer Prize winning author Annie Dillard. We had traveled to Sweden to teach our own creative writing...
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You Are the Expert on Your Preferred and Effective Communication – “Le Pape v. Lower Merion School District,” a Landmark Civil Rights Case
Alex Le Pape was in high school when he told Lower Merion School District that a letter board was his preferred and effective means of communication and asked to use it throughout the school day. At an age when most students are simply trying to navigate adolescence, with that request, Alex began...
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Training Communication Partners for Nonspeaking Spellers: A Replicable, Evidence-Informed Framework
I have watched my adult nonspeaking, autistic son be offered a letterboard by someone untrained in his primary form of communication: spelling. His thoughts were clear, but the board wasn't properly placed, no relationship had been established, no motor coaching was provided — and nothing came...
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Building Community and Advocacy: From Voiceless to SEEN and Heard
I got used to being silent. It was the loneliness and being invisible that was soul crushing. Being able to finally say anything I wanted as a nonspeaking autistic with apraxia was liberating. I have never been able to communicate by using my mouth. When I was a child, I did speak a few...
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Lessons From Listening to a Typer: Stony Brook Medicine School of Social Welfare Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) Fellowship Program
Director's Perspective It was July 2022, and I had just finished my first year as the Director of the Stony Brook University Leadership Education in Neurodevelopmental and Other Related Disabilities (SBU LEND) Program. Invited to present on the Research Panel for the I-ASC Motormorphosis...
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Presuming Competence: What It Really Means and Why It Is Life Changing
Presuming competence is such a core foundational principle for people working with non-speakers to understand. It is the very first thing we talk about in our training programs and a topic we revisit in every coaching session. Parents, staff, therapists, teachers, and anyone else interacting with...
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Beyond Accommodations: Building Belonging for Autistic College Students
For many autistic students, receiving a college acceptance letter is not the end of the journey; it is the beginning of a new set of opportunities and challenges. While conversations surrounding autism often focus on early intervention and K–12 education, far less attention is given to what...
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Designing Databases That Drive Continuous Improvement for Clients and Organizations
Today’s classrooms are often filled with technology, some not even imagined just a decade ago. Tablet computers loaded with educational or communication software, PC stations, iPods, Augmentative and Alternative Communication (AAC) devices, and Wi-Fi internet service are...
