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Under Pressure: Support for Siblings of Individuals with ASD
As a school-based mental health professional and a sister of a person with autism spectrum disorder (ASD), the sibling perspective on family-centered care is not just important to me, but necessary in order to give comprehensive and competent care to the families who look to communities and schools...
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Siblings Realize They’re Not Alone: AHRC NYC Sibshops Unveil Common Challenges
Lori Jacobs recalled a conversation with her younger son Seth, whose brother Ian has high-functioning autism and mood disorders. “Seth said, ‘Promise me I won’t have to take care of him when I grow up. And please, promise me you have a plan for him,’” Lori said. This wasn’t the type...
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Siblings: Common Concerns and Effective Support Strategies
Like parents of individuals with Autism Spectrum Disorders (ASD), siblings experience unique concerns and opportunities. The sibling relationship can easily exceed six decades, and siblings face these issues for even longer than parents. Historically, siblings have had few opportunities to receive...
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Girls and Autism: Overcoming the Gender Gap to Ensure Best Outcomes
The Centers for Disease Control (CDC) estimates that 1 in 59 children has autism spectrum disorder (ASD), with boys being four times more likely to be diagnosed than girls (Mandy et al., 2012). Recently, through a meta-analysis of epidemiological studies, it was concluded that the true ratio may be...
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Providing a Safe Haven for Special Siblings
We know that, in most families, the longest lasting relationship one has is with his or her sibling. When one of those siblings has a special need, the dynamic of this lifetime relationship can be significantly impacted. For some, a brother or sister learns to quickly adapt to new routines of...
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Extending a Helping Hand
As a behavior specialist working in the home with the families of individuals with disabilities there is an exceptional opportunity to identify needs and concerns of not just our direct client, but also the family as a whole. While the primary focus is on the adult or child who needs support, it is...
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How Supported Decision-Making Can Help Family Caregivers
Individuals with autism should have a choice in what happens to them throughout their lives. Too often, parents of children and adults with autism, intellectual, or developmental disabilities are advised – and often when their child is very young, long before it is possible to predict their...
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Support of Coaching to Develop Key Skills that Facilitate Independent Living
Independent living skills, or life skills, are important tools that are needed in order to successfully navigate the world. In the 1990’s, a surge of children were diagnosed with autism spectrum disorders (ASD) and are now approaching adulthood (VanBergeijk, E., Klin, A. & Volkmar, F....
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Employment Boot Camp Prepares Job Seekers with ASD
Employment is a socially normative activity that is a key factor in adult life and successful community inclusion (Fussell & Furstenberg, 2005). Paid employment contributes greatly to quality of life outcomes including economic and social wellbeing, enhanced self-esteem, positive health...
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Defining Care for High-Functioning Adults with Autism
A lost art in modern conversation (not surprisingly, as we are quite possibly the busiest society in world history) is the definition of one’s terms. To be sure, this requires time and patience; but by clarifying all foundational points, we make the rest of the conversation much easier....
