Archive for the ‘#ActuallyAutistic Self-Advocates’ Category

Re-Envisioning Our Unnecessarily Disabled Futures

Most disabled adults are forced to live segregated, impoverished lives absent of the security, life expectancy, community, and agency that all human beings deserve. For those of us from historically marginalized communities, including non-speakers, the isolation can be even more profound. The life...

Lessons From Listening to a Typer: Stony Brook Medicine School of Social Welfare Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) Fellowship Program

Director's Perspective It was July 2022, and I had just finished my first year as the Director of the Stony Brook University Leadership Education in Neurodevelopmental and Other Related Disabilities (SBU LEND) Program. Invited to present on the Research Panel for the I-ASC Motormorphosis...

“The Best Medicine Is Respect!” Creating a Supportive Healthcare Environment for Nonspeakers

For around 30% of people with autism spectrum disorder (ASD), verbal speech is limited, unreliable, or unavailable (Jaswal et al., 2026). Autistic people who are nonspeaking use a variety of augmentative and alternative communication (AAC) to communicate; this includes picture-based systems,...

Advancing the Rights-Based Inclusion of People Who Need and Use AAC: A Guide to Allyship

People often ask CommunicationFIRST for our recommendations for interacting with people who need and use augmentative and alternative communication (AAC) tools and supports,1 including nonspeaking autistic people, autistic people who are sometimes able to speak, and people with other...

Presuming Competence: What It Really Means and Why It Is Life Changing

Presuming competence is such a core foundational principle for people working with non-speakers to understand. It is the very first thing we talk about in our training programs and a topic we revisit in every coaching session. Parents, staff, therapists, teachers, and anyone else interacting with...

The Miracle Project’s Express Yourself Program Gives Nonspeaking/Multi-Modal Artists the Stage

The Miracle Project (TMP), founded in 2004, is internationally recognized as the first systematic, evidence-based program to use expressive and performing arts to improve quality of life and relationships for autistic individuals while challenging negative societal stereotypes through authentic...

Life Through an Autistic Lens: All Those Steps

There is a glob of peanut butter on my kitchen floor. There is also one on the floor next to my desk, in the middle of my living area, and in front of my couch. A browny-orange trail is also dripping downwards to my elbow, but I leave it there for the moment. There’s a tissue box on my bed and...

The Performing Arts: More Than Access to Recreation for Autistic Children and Adults

The school district I attended between 4th and 9th grades included a professionally managed theater arts program. In fifth grade, my class was treated to a live performance of Pippi Longstocking. The following year, I was cast in a small, non-speaking role in Tom Sawyer. My parents enrolled me in...

The Role of Anime as a Special Interest in Autistic Well-Being

Media has been a way to share stories, express ideas, and provide a sense of connection and understanding. Many individuals consider shows a special interest, and it becomes a strong topic and passion in their social lives. One example of media that is commonly discussed is cartoons and animated...

Who Is Caring for Whom? Rethinking Care Work and Disability

I feel literally stuck between a rock and a hard place. It’s the night of my choir performance and the choir is grouped by sections and lined up in rows in the community centre auditorium. I find myself in the centre of the soprano section: there’s one row in front of me, one row behind, and...