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Navigating Autism as a Black Parent: Our Story, Our Struggle, Our Strength
When my son Joshua was first diagnosed with developmental delays—and later with autism—our lives changed in profound ways. The impact wasn’t just emotional; it was deeply systemic. We entered a world not designed for families like ours. Our story began with quiet questions. Why...
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“Behavior as a Voice”: Medical Comorbidities Expressed Through Challenging Behaviors in Children with Autism Spectrum Disorder
Autism Spectrum Disorder (ASD) is a heterogeneous neurodevelopmental condition defined by social-communication challenges and restricted/repetitive behaviors. However, these behaviors often serve as a form of communication, particularly in non-verbal or minimally verbal individuals. Medical...
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Why Don’t Autistic Women Get Diagnosed, and Why Is It So Important?
I’ve diagnosed unrecognized autistic women for ten years and worked with them in therapy. These women are often successfully employed and married or with partners. They might have children and be involved in working with schools on their children’s behalf. Some might have struggled in jobs or...
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Autistic Lived Experience: Compromised by Neuropsychological Malpractice
If the world were a rightly ordered place, then this story takes a very different turn than it did. Looking back on how it unfolded, the wrong that was committed against me, as hurtful as it was, is not surprising, considering all I have learned since then about the prevailing narrative around...
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The Gulf Coast Burnout Queen
Ten years ago, we began to sense that women on the spectrum had largely gone unnoticed and, therefore, undiagnosed to degrees that might actually be beyond our imagination. It was like waking up to find out that the nightmare was real. Thanks to the cultural realities of gender expectation,...
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Breaking My 33-Year Silence: Living with Autism and Finding Acceptance
As we celebrate World Autism Awareness/Acceptance Day, I feel compelled to share a story I have kept private for thirty-three years—not just to raise awareness but to advocate for a world that respects neurodiversity. For most of my life, I have witnessed others define autism from the outside...
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Demystifying the Evaluation Process for Your Infant, Toddler, and Preschool Child with Developmental Concerns
Suspecting something may be wrong with your child’s development is a scary thought. It can be confusing as to what one does next. If your child is born with an apparent disability, the pediatrician will refer your infant or toddler to the birth-to-three system, where a team of professionals will...
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Interdisciplinary Approach to Obtaining a Medical Diagnosis for Individuals With a Complex Behavioral Profile
Individuals with complex behavioral and medical profiles require an interdisciplinary approach due to multiple specialized areas of need. This approach allows interdisciplinary teams to efficiently address multiple presenting needs simultaneously and comprehensively (Boivin et al., 2021). This...
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Pulling It All Together: How to Create a Multidisciplinary Team for Your Child With Autism
When families receive an autism diagnosis for their child, they may not realize they are also likely receiving a diagnosis for other medical and behavioral health conditions that have not yet been identified. Autism is a chronic condition that requires ongoing treatment and support. Certain...
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Challenges for Autistic Adults in Navigating the Labyrinth of Healthcare
As I was fortunate enough to have had employment with good healthcare benefits, I did not have to face many of the challenges in navigating the healthcare system that autistics regularly encounter. Nevertheless, because of my involvement with the autism community over the past quarter century, not...
