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How to Best Support Siblings of Individuals with ASD
Typically developing siblings of individuals with autism spectrum disorders (ASD) have a unique set of needs that often go overlooked and unnoticed. These needs are generally social and emotional in nature and can affect siblings at any age during their lifespan. When one family member has a...
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Autism Through a Different Lens: A Sibling’s Perspective
In my profession, I often write articles from a parent’s perspective about having an 18-year-old daughter (Annie) with severe autism, and intellectual and developmental disabilities. My overarching goal with these stories is to provide compassion, understanding and hope to families, caregivers...
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A Unique Program to Support Autism Educators During COVID-19 Distance Learning
The COVID-19 crisis has led to unprecedented school closures and a rapid transition to distance education which severely disrupted educational services for students on the autism spectrum. Distance learning will likely continue beyond the acute crisis as social distancing efforts persist. The...
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Utilizing Digital Media to Enable Continuity of Autism Services
For over a decade there has been an abundance of professional articles and seminars on the potential of telehealth and distance learning services. Outside of the medical world, the movement of state licensing bodies and insurance payers to permit use of telehealth services by licensed behavioral...
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Helping Parents Address Challenging Behaviors During These Challenging Times
There is a clear consensus that children with disabilities are the most vulnerable to both short- and long-term effects of COVID-19 (United Nations, 2020). This is particularly true for children with Autism Spectrum Disorder (here forward autism) for whom the sudden disruptions in educational and...
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Assembling an Emergency Toolkit for Children with Disabilities
In the journey of parenthood, one of the most challenging things caregivers of children can encounter are the inevitable injuries and emergencies. Last year, I had to take my daughter, Annie – who has autism and intellectual and developmental disabilities – to the emergency room (ER). Going...
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Why Autism Parents Say: “I Can Never Die”
The caregiving workforce shortage is and will be a crisis for so many Americans. “I can never die.” This is the rallying call of autism parents everywhere. Why do we feel that way? Because many autistic adults live with their parents – 85%, according to autism researcher Peter Gerhardt....
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A Group-Format Parent Training Program to Improve Communication Skills in Young Children with ASD
The first few years of life are an important period for communication and language development. Even before the emergence of spoken language, typically-developing children engage in communicative interchanges with caregivers through gaze, directed facial expressions, gestures, and vocalizations....
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Parental Age Ups Rate of New Mutations Passed to Children
Men and women both transmit an increasing number of new mutations to their children as they age, according to a study published recently in Nature (Jónsson H. et al., 2017). The finding is based on an analysis of whole genomes from nearly 5,000 people. The increase in these ‘de novo’ mutations...
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A Support Group for Parents of Tween Girls with Autism Spectrum Disorder
The gender imbalance among those diagnosed with autism spectrum disorder (ASD) is 4 to 1 boys to girls. When considering those diagnosed with ASD without intellectual disability, the imbalance is even greater - 7:1 (Skuse & Mandy 2015). One consequence of this gender imbalance is that parents...
