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From Parent to Advocate: My Mission to Help Other Families
When my son Oliver was about nine months old, I noticed some milestone delays. I also realized that he had a tic. He would get very excited - wailing - when he saw something that caught his attention. It was also around that time that I knew I had to quickly become his advocate. Naturally, I...
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Thriving During COVID-19: Transitioning to Virtual Programming for Individuals with Disabilities
In this ever-changing health crisis, the world has been altered. Our daily patterns have been changed and the ways in which we connect with and support others has shifted. For those with a disability, maintaining a sense of community and human connection is more important than ever. Organizations...
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Telehealth Program for People with I/DD Launches in New York
A new way of delivering healthcare to people with intellectual and developmental disabilities (I/DD) has come to New York. Launched in September, Premier HealthCare’s Telehealth Services enables patients with autism and other types of I/DD to access mental and physical health services without a...
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Home-Based Services as a Means to Increasing Community Engagement in Individuals with Autism
Community engagement is a broad term that is informed by an ecological perspective that one’s behavior is impacted by larger social, cultural and physical environments. Community engagement has been defined as “the process of working collaboratively with and through groups of people affiliated...
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27% of Adults with Autism Who Use State Disability Services Have No Work or Other Activities – 2017 National Autism Indicators Report
A quarter of adults with autism who use state developmental disability services are not working or participating in other structured activities during the day, with only 14 percent holding a paying job in the community, according to the A.J. Drexel Autism Institute. Since 2015, the Institute has...
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What Kind of Research Can Guide the Growth of ASD Services?
Most of my 25-year career in ASD has centered on providing services. Throughout that time, I have tried to draw straight lines from research findings to practice, and show how science benefits children with ASD. On the way, I learned is that not all research is equally relevant to service...
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The Changing World of OPWDD Services and Supports
For every parent who watches their child morph into a young adult right in front of their eyes, this transformation is filled with anticipation, uncertainty and limitless challenges. For the parent with a child on the autism spectrum these issues are magnified as they begin to explore the world of...
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What You Need to Know Before Your Child Transitions to School
Although it is common knowledge that transitions are hard for most children with special needs, transitions can also be difficult for their parents, especially the transition from services in the home to services in the school. Under the age of three years, children are cocooned in their own...
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Q&A with Renowned Autism Expert Dr. Catherine Lord – Identifying Children with ASD and Finding Services After Diagnosis
Renowned autism expert Dr. Catherine Lord is the Director of NYP’s Center for Autism and the Developing Brain (CADB). Opening in early 2013, CADB will be the region’s most comprehensive center for diagnosing and treating patients with Autism Spectrum Disorders (ASD). Dr. Lord shared some of her...
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Comprehensive Approach to Working with Individuals with Autism
Families and individuals with Autism Spectrum Disorders receive an endless bombardment of information pertaining to various therapies and approaches to address their complex needs. Navigating these therapies can be extremely confusing and for many it has become something comparable to a full time...
