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Behind the Behavior: Stigma, Misunderstanding, and the Emerging Profile of Pathological Demand Avoidance
“Stigma is the process by which the reaction of others spoils normal identity.” - Erving Goffman When a child resists instruction, lashes out under pressure, or refuses school altogether, the dominant narrative still points toward oppositional defiance, behavioral reinforcement systems, or a...
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Autism and the Stigmas of Living with an Invisible Disability
Autism, at least for the less severely impaired, has been called an “invisible disability.” This is because the challenges faced by autistics are not as readily evident as those of other disabilities. A visually impaired person, or one using a wheelchair, is immediately seen as someone facing...
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What Families With Autism Should Consider When Evaluating School Programs
One of the greatest challenges parents of children with disabilities face is finding the most appropriate educational program. When searching for a school for a child with autism spectrum disorder (ASD), the task can be complex. Understanding instructional and social variables can help parents make...
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Setting Students Up for Success: Balancing Sensory Needs in the Classroom
Sensory considerations play a key role in developing a classroom environment conducive to learning. When classrooms are arranged with sensory needs in mind, teachers will often see increased levels of social participation and task engagement. Some students face challenges finding their voice in a...
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Supporting Families to Prepare Students to Be Participating Members of Their Community
For over five decades, I’ve had the privilege of serving students with autism and developmental disabilities and their families. I’ve been employed as a teacher, administrator, professor, consultant, and advocate in public, private, nonprofit, and for-profit settings, working in preschools,...
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Supporting Young Adults: Transitioning to Post-Secondary Educational Opportunities
This fall, I dropped my oldest child off for his junior year of college. For our family, this is always a time of excitement, but also one of trepidation. The transition from high school to higher education, from childhood to adulthood, is full of new and evolving challenges. Those challenges are...
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Supporting Immigrant Parents (Now U.S. Citizens) In Navigating Services for Autistic Children
There has been an increase in the prevalence of childhood disability worldwide. One in six children, ages 3-17, has recently been diagnosed with a developmental disability.1 Parenting children with a disability poses challenges for all parents, although immigrant parents experience more...
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Navigating the Legal Rights and Entitlements for Your Student with Autism
The Individuals with Disabilities Education Act (IDEA) is the federal law that governs the education of children with disabilities, including autism. Congress’ purpose in passing IDEA 48 years ago was to open the school doors for children with disabilities and provide them “a free appropriate...
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Enhancing Communication and Accessibility: Assistive Technology for Individuals with Autism
What do a wheelchair, closed captioning on a television screen, and a visual schedule all have in common? They are part of an extensive list of products or services that enable those with disabilities to access activities of daily living. Like a wheelchair, assistive technology can provide...
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The Power and Potential of the IEP
To address the inequity of limiting special needs children from obtaining an appropriate public education, the Individualized Education Program (IEP) was implemented in 1975 across the United States school systems. The IEP is an educational road map for children with disabilities. It is required by...
